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Quality and reliability assessment of systemic lupus erythematosus related health information on short video platforms
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DOI：10.3389/fdgth.2026.1875817.png)
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Abstract
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BackgroundSystemic lupus erythematosus (SLE) is a chronic autoimmune disease involving multiple organ systems. Patient education is an essential component of disease management. With the rapid development of digital media; short-video platforms have become increasingly important health information sources for SLE patients. Therefore; the quality of health information disseminated through these platforms warrants attention. However; evidence regarding the quality of SLE-related health information on short-video platforms remains limited.MethodsOn September 18; 2025; SLE-related videos were retrieved from TikTok; Rednote (Xiaohongshu); and Bilibili. We evaluated the videos' reliability using the DISCERN instrument; their overall quality using the Global Quality Scale (GQS); and their understandability and actionability using the Patient Education Materials Assessment Tool (PEMAT-U/A).ResultsA total of 276 SLE-related videos from three platforms were analyzed. Significant differences in video quality and reliability were observed among platforms (p < 0.001). Specifically; videos on Rednote exhibited the highest quality; while TikTok videos demonstrated the lowest quality. Videos produced by online health science communicators and certified medical professionals had significantly higher DISCERN and PEMAT-U scores than patient-generated videos (p < 0.05). Correlation analysis indicated that video engagement metrics were positively associated with quality and reliability on Bilibili (p < 0.01); whereas a negative correlation was found on TikTok and Rednote (e.g.; DISCERN vs. likes on TikTok: r = −0.327; p = 0.001; GQS vs. collections on Rednote: r = −0.365; p = 0.006). Regarding the relationship between quality and engagement; DISCERN and GQS; and PEMAT-U scores on Bilibili were positively correlated with engagement metrics (p < 0.01). In contrast; several inverse associations were identified on TikTok and Rednote; including negative correlations between DISCERN scores and likes on TikTok (r = −0.327; p = 0.001) and between GQS scores and collections on Rednote (r = −0.365; p = 0.006).ConclusionThe quality and reliability of SLE-related videos vary significantly across platforms and are generally suboptimal. The relationship between video quality and user engagement is platform- and measure-specific; suggesting higher-quality health information does not always translate into greater user engagement. Enhancing reliable health information requires coordinated efforts to improve both content quality and audience engagement.
Keywords:
quality assessment
social media
systemic lupus erythematosus
short video
health information
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