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A person-centred problem

delete2022-05-03
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OA
AI
M
Michael Chapman *
J
Jennifer Philip
P
Paul A. Komesaroff
DOI:10.1057/s41599-022-01166-9delete
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Abstract

Abstract

En 中文
It has become commonly expected that the personhood of people with dementia should be recognised, understood in the relational sense that is now widely adopted in healthcare practices. Despite its broad acceptance, however, the concept of personhood remains problematic in dementia care, as a result both of the theoretical challenges it poses and the practices that arise from it. This work employs the technique of ethnographic observation of residents, family members, and care staff of an aged care facility to explore the ways in which various modalities of the self are displayed in persons with dementia. The results provide insights into the moral and ontological impact of personhood on the systems that structure and influence interactions involving people with dementia. We conclude that privileging a preserved identity in dementia, and delivering care that conforms to contemporary person-centred expectations may limit recognition of the fluid, ongoing selfhood of people with dementia and that a reconsideration of this focus may enable us to expand our understanding of, and our responses to, their changing experiences.
Keywords:
ALZHEIMERS-DISEASE
DEMENTIA
ETHNOGRAPHY
EMBODIMENT
EXPERIENCE
SELFHOOD

Journal

Humanities and Social Sciences Communications cover
Humanities and Social Sciences Communications
IF:
3.6
Papers:
6.6K
Citations:
8.9K

Organization

A
Australian National University
Scholars:
2.1W
Papers: 2.3W
Citations: 3.9W
S
St Vincent's Health
Scholars:
3.2K
Papers: 2.4K
Citations: 430
U
university of technology sydney
Scholars:
1.6W
Papers: 2.0W
Citations: 25
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