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Better Guidelines, Better Patient Lives: A Sustainable Partnership Model for Integrating Lived Experience into Clinical Guideline Development
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DOI：10.1016/j.kint.2026.02.046.png)
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Abstract
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To realize their full potential in improving health outcomes, clinical guidelines must integrate methodological rigor with practical relevance and human impact. This paper is a work of advocacy and proposal for action. Drawing upon established research, emerging paradigms, and our collective experience as patients and researchers and our respective background in legal, governance and healthcare, we build a case that the systematic integration of lived experience - the unique, embodied knowledge held by patients and caregivers - is essential for guideline relevance and implementation.
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