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Beyond Mistrust: Diverse Biobanking Preferences Among Parents and Adolescents with Sickle Cell Disease

delete2026-06-19
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PRE
AI
M
Meaghann S. Weaver
A
Ambria Williams
B
Belinda N. Mandrell
J
Jane S. Hankins
J
Jami S. Gattuso
A
Abagail Cohen
Y
Yunusa Olufadi
G
Guolian Kang
L
Liza‐Marie Johnson *
DOI：10.1016/j.gim.2026.102635delete
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Abstract

Abstract

En 中文
– To examine biobanking preferences among adolescents with sickle cell disease (SCD) and parents of children with SCD, to inform best practices for promoting informed consent.

Journal

Genetics in Medicine cover
Genetics in Medicine
IF:
6.2
Papers:
5.1K
Citations:
2.0W

Organization

S
St Jude Children's Research Hospital
Scholars:
1.3K
Papers: 311
Citations: 0
S
St. Jude Children's Research Hospital
Scholars:
623
Papers: 167
Citations: 1.6W
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