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European cancer data sharing: Analyses of an international survey
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DOI：10.1016/j.ijmedinf.2026.106544.png)
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Abstract
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• Survey of 75 cancer institutions across 23 European countries on cancer data sharing. • GDPR compliance and legal complexity outrank technical hurdles as top barriers. • Fragmented standards adoption (33 % FHIR, 21 % OMOP) threatens EHDS implementation.
Keywords:
Health information exchange
Public health infrastructure
Patient generated health data
Data Curation
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