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Quest markup for developing FAIR questionnaire modules for epidemiologic studies

delete2023-10-25
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OA
AI
D
D. Russ *
N
Nicole Gerlanc
B
Brian Shen
B
Bhaumik Patel
A
Amy Berrington de González
N
Neal D. Freedman
J
Julie M. Cusack
M
Mia M. Gaudet
M
Montserrat García‐Closas
J
Jonas S. Almeida
DOI:10.1186/s12911-023-02338-6delete
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Abstract

Abstract

En 中文
BackgroundOnline questionnaires are commonly used to collect information from participants in epidemiological studies. This requires building questionnaires using machine-readable formats that can be delivered to study participants using web-based technologies such as progressive web applications. However, the paucity of open-source markup standards with support for complex logic make collaborative development of web-based questionnaire modules difficult. This often prevents interoperability and reusability of questionnaire modules across epidemiological studies.ResultsWe developed an open-source markup language for presentation of questionnaire content and logic, Quest, within a real-time renderer that enables the user to test logic (e.g., skip patterns) and view the structure of data collection. We provide the Quest markup language, an in-browser markup rendering tool, questionnaire development tool and an example web application that embeds the renderer, developed for The Connect for Cancer Prevention Study.ConclusionA markup language can specify both the content and logic of a questionnaire as plain text. Questionnaire markup, such as Quest, can become a standard format for storing questionnaires or sharing questionnaires across the web. Quest is a step towards generation of FAIR data in epidemiological studies by facilitating reusability of questionnaires and data interoperability using open-source tools.
Keywords:
Surveys and questionnaires
Data collection
Data commons
Data science
Epidemiologic methods
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Journal

BMC Medical Informatics and Decision Making cover
BMC Medical Informatics and Decision Making
IF:
3.8
Papers:
4.3K
Citations:
1.2W

Organization

N
national institutes of health (nih) - usa
Scholars:
10.3W
Papers: 8.2W
Citations: 111