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Rekindling with aphasia: qualitative findings from an exploratory intimacy support group for people with aphasia and their partners
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DOI：10.1080/02687038.2026.2630054.png)
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Abstract
En 中文
BackgroundPeople with aphasia (PWA) often experience changes to romantic relationships and intimacy due to their communication difficulties, even outside of those caused by physical and emotional changes due to stroke. However, little is known about the nature of these changes or how to address them in clinical care.AimsThis qualitative study explored (a) the impacts of aphasia on participants' romantic and intimate lives, (b) the effects of an aphasia support group intervention on the above, and (c) participants' views on speech-language pathologists' (SLP) role in addressing these concerns.MethodsNine PWA and five romantic partners without aphasia were invited to the Rekindling with Aphasia 4-week support group. Topics discussed included effects of aphasia on relationships, getting in touch with your post-stroke self, sexual intimacy with aphasia, and relationship goal-setting. Phenomenological interviews about experiences and needs were completed before and after intervention.Outcomes & ResultsFeelings of self-worth and agency were mitigating factors in relationship changes, with participants often waiting for a return to a feeling of normal before they could address romantic and intimate issues. Reduced feelings of emotional and physical intimacy were common. The group helped participants focus on relationship issues and see intimacy as a potential subject for rehabilitation, spurring meaningful conversations with partners and providers. However, the group setting felt insufficiently individualized for some participants. Participants felt that SLPs addressing romantic concerns deepened the therapeutic relationship.ConclusionsAddressing romantic and intimacy concerns after aphasia can increase PWA's feelings of agency over these often-demoralizing issues. A support group can provide the vocabulary and context needed to have these conversations with partners and healthcare professionals.
Keywords:
Aphasia
intimacy
relationships
life participation
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