.png){kind=icon}
.png){kind=icon}
Return
Standardized Interoperable Data Collection for Myositis Research: Developing Expert Consensus on Common Data Elements for Myositis Outcome Measures
.png){kind=icon}
PRE
AI
DOI：10.1002/acr.80032.png)
.png){kind=icon}
Original request for help.png){kind=icon}
Share.png){kind=icon}
Save
Abstract
En 中文
Recent progress has been made in developing validated myositis outcome measures. However, critical deficiencies remain for data standardization across myositis registries. While the National Institute of Health (NIH) Common Data Elements (CDE) Repository has been developed to facilitate standardized data collection and sharing, few myositis-specific CDEs currently exist. We developed CDEs for myositis outcome measures using novel data science strategies.
Keywords:
myositis
common data elements
outcome measures
data standardization
interoperable data collection
Journal
A
IF:
3.3
Papers:
189
Citations:
0
Organization
View more organizations