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The CHI-RON Study: Using PCORnet: ®: and Patient Engagement Strategies to Improve Diversity Among Research Participants in the Congenital Heart Initiative
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DOI：10.1097/MLR.0000000000002222.png)
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Abstract
En 中文
The Congenital Heart Initiative-Redefining Outcomes and Navigation to Adult-Centered Care (CHI-RON) study is a unique collaboration between the PCORnet and Congenital Heart Initiative (CHI), the first patient powered registry for adult congenital heart disease (ACHD) patients. The CHI-RON study examines the effects of gaps in recommended care in ACHD.
Keywords:
engagement
recruitment
congenital heart disease
rare disease
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