Not logged inFrench consensus statement on transition of adolescent and young adults with rare pulmonary disease from paediatric to adult care: a Delphi method study
Peulier-Maitre, Elora; Goutaki, Myrofora; Nathan, Nadia; Patout, Maxime; Amedro, Pascal; Beltramo, Guillaume; Blonde, Aurore; Bonnet, Damien; Borie, Raphael; Bruneaux, Caroline; Carlier-Gonod, Adele; Coatrieux, Virginie; Cros, Pierrick; Douvry, Benoit; Dubus, Jean-Christophe; Dufeu, Nadine; Dulac, Yves; Ferry, Magali; Girardon, Dominique; Gonsseaume, Suzy; Grange, Anne-Cecile; Hameury, Frederic; Jaffre, Sandrine; Ladouceur, Magalie; Llerena, Catherine; Madaoui, Farida; Manali, Effrosyni; Mellerio, Helene; Mittaine, Marie; Morsa, Maxime; Papon, Jean-Francois; Schwartz, Elsa; Sitbon, Olivier; Szezepanski, Isabelle; Tessier, Manon; Werck-Gallois, Marie-Christine; Zemouri, Melisa; Hascoet, Sebastien; Remus, Natascha; Thouvenin, Guillaume .png)
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SaveConsensus definition of sinonasal and otologic exacerbation in patients with primary ciliary dyskinesiaGoutaki, Myrofora; Lam, Yin Ting; Anagiotos, Andreas; Armengot, Miguel; Burgess, Andrea; Campbell, Raewyn; Carlier, Mathilde; Caversaccio, Natalie; Chadha, Neil K.; Demir, Berat; Dheyauldeen, Sinan Ahmed D.; Gunaydin, Onder; Harris, Amanda; Hayn, Isolde; Inal-Ince, Deniz; Lev, Eric; Fernandez, Trini Lopez; Lucas, Jane S.; Maitre, Bernard; Poirrier, Anne-Lise Ml; Schofield, Lynne; Takeuchi, Kazuhiko; Van Gogh, Christine; Wolter, Nikolaus E.; Papon, Jean-Francois Share Save Skewed X-chromosome inactivation drives the proportion of DNAAF6-defective airway motile cilia and variable expressivity in primary ciliary dyskinesiaThomas, Lucie; Cuisset, Laurence; Papon, Jean-Francois; Tamalet, Aline; Pin, Isabelle; Abou Taam, Rola; Faucon, Catherine; Montantin, Guy; Tissier, Sylvie; Duquesnoy, Philippe; Dastot-Le Moal, Florence; Copin, Bruno; Carion, Nathalie; Louis, Bruno; Chantot-Bastaraud, Sandra; Siffroi, Jean-Pierre; Mitri, Rana; Coste, Andre; Escudier, Estelle; Thouvenin, Guillaume; Amselem, Serge; Legendre, Marie Share Save The Prognostic Value of Olfactory Dysfunction in Patients with COVID-19: The COVIDORA StudyHamel, Anne-Laure; Delbos, Leo; Natella, Pierre-Andre; Radulesco, Thomas; Alexandru, Mihaela; Bartaire, Emmanuel; Bartier, Sophie; Benoite, Gonda; Bequignon, Emilie; Castillo, Laurent; Canoui-Poitrine, Florence; Carsuzaa, Florent; Corre, Alain; Coste, Andre; Couloigner, Vincent; Daveau, Clementine; De Boissieu, Paul; De Bonnecaze, Guillaume; De Gabory, Ludovic; Debry, Christian; Deraedt, Simon; Dufour, Xavier; El Bakkouri, Wissame; Gilain, Laurent; Hans, Stephane; Hautefort, Charlotte; Hermann, Ruben; Jankowski, Roger; La Croix, Candice; Lecanu, Jean-Baptiste; Malard, Olivier; Michel, Justin; Nguyen, Yann; Nevoux, Jerome; Papon, Jean-Francois; Patron, Vincent; Prigent, Marine; Pruliere-Escabasse, Virginie; Renaud, Marion; Rumeau, Cecile; Salmon, Dominique; Saroul, Nicolas; Serrano, Elie; Nhung Tran Khai, Christine; Tringali, Stephane; Truy, Eric; Vandersteen, Clair; Verillaud, Benjamin; Veil, Raphael; Fieux, Maxime Share Save Share Save Differentiating pathologic parathyroid glands from thyroid nodules on neck ultrasound: the PARATH-US cross-sectional studyYazgi, Dolly; Richa, Carine; Salenave, Sylvie; Kamenicky, Peter; Bourouina, Amel; Clavier, Lorraine; Dupeux, Margot; Papon, Jean-Francois; Young, Jacques; Chanson, Philippe; Maione, Luigi Share Save Association between upper and lower respiratory disease in primary ciliary dyskinesiaLam, Yin Ting; Papon, Jean-Francois; Alexandru, Mihaela; Anagiotos, Andreas; Armengot, Miguel; Boon, Mieke; Burgess, Andrea; Calmes, Doriane; Crowley, Suzanne; Dheyauldeen, Sinan Ahmed D.; Emiralioglu, Nagehan; Eralp, Ela Erdem; Van Gogh, Christine; Haarman, Eric G.; Harris, Amanda; Hayn, Isolde; Hool, Sara-Lynn; Karadag, Bulent; Kempeneers, Celine; Kim, Sookyung; Latzin, Philipp; Lorent, Natalie; Ozcelik, Ugur; Reula, Ana; Roehmel, Jobst; Yiallouros, Panayiotis; Goutaki, Myrofora Share Save Share Save Temporal Stability of Ciliary Beating Post Nasal Brushing, Modulated by Storage TemperatureBricmont, Noemie; Bonhiver, Romane; Benchimol, Lionel; Louis, Bruno; Papon, Jean-Francois; Monseur, Justine; Donneau, Anne-Francoise; Moermans, Catherine; Schleich, Florence; Calmes, Doriane; Poirrier, Anne-Lise; Louis, Renaud; Seghaye, Marie-Christine; Kempeneers, Celine Share Save Share Save Characteristics of Otologic Disease Among Patients With Primary Ciliary DyskinesiaGoutaki, Myrofora; Lam, Yin Ting; Alexandru, Mihaela; Anagiotos, Andreas; Armengot, Miguel; Boon, Mieke; Burgess, Andrea; Caversaccio, Nathalie; Crowley, Suzanne; Dheyauldeen, Sinan Ahmed D.; Emiralioglu, Nagehan; Erdem, Ela; van Gogh, Christine; Gunaydin, Onder; Haarman, Eric G.; Harris, Amanda; Hayn, Isolde; Ismail-Koch, Hasnaa; Karadag, Bulent; Kempeneers, Celine; Kim, Sookyung; Lorent, Natalie; Ozcelik, Ugur; Pioch, Charlotte; Poirrier, Anne-Lise M. L.; Reula, Ana; Roehmel, Jobst; Yiallouros, Panayiotis; Yumusakhuylu, Ali Cemal; Papon, Jean-Francois Share Save Definition of severity and treatment response in chronic rhinosinusitis with nasal polyps: a Delphi study among French expertsCarsuzaa, Florent; Fath, Lea; Fieux, Maxime; Bartier, Sophie; de Bonnecaze, Guillaume; Rumeau, Cecile; Michel, Justin; Papon, Jean-Francois; Alexandru, Mihaela; Favier, Valentin Share Save Otological Manifestations in Adults with Primary Ciliary Dyskinesia: A Controlled Radio-Clinical StudyAlexandru, Mihaela; de Boissieu, Paul; Benoudiba, Farida; Moustarhfir, Malik; Kim, Sookyung; Bequignon, Emilie; Honore, Isabelle; Garcia, Gilles; Mitri-Frangieh, Rana; Legendre, Marie; Crestani, Bruno; Taille, Camille; Escudier, Estelle; Maitre, Bernard; Papon, Jean-Francois; Nevoux, Jerome Share Save Post-acute COVID-19 syndromeMontani, David; Savale, Laurent; Noel, Nicolas; Meyrignac, Olivier; Colle, Romain; Gasnier, Matthieu; Corruble, Emmanuelle; Beurnier, Antoine; Jutant, Etienne-Marie; Pham, Tai; Lecoq, Anne-Lise; Papon, Jean-Francois; Figueiredo, Samy; Harrois, Anatole; Humbert, Marc; Monnet, Xavier Share Save Service delivery models for primary ciliary dyskinesia, an international comparisonRubbo, Bruna; Behan, Laura; Driessens, Corine; Athanazio, Rodrigo; Benjamin, Antony Terance; Ganesh, Veerappan Ramamoorthi Ram; Goodwin, Johnny; Karadag, Bulent; Kouis, Panayiotis; Martin, Ana Reula; Nielsen, Kim; Olm, Mary Anne; Omran, Heymut; Papon, Jean-Francois; Pinto, Andreia; Rumman, Nisreen; Snijders, Deborah; Zivkovic, Zorica; Parsons, Camille; Kuehni, Claudia E.; Lucas, Jane S. Share Save Share Save Topological data analysis reveals genotype-phenotype relationships in primary ciliary dyskinesiaShoemark, Amelia; Rubbo, Bruna; Legendre, Marie; Fassad, Mahmoud R.; Haarman, Eric G.; Best, Sunayna; Bon, Irma C. M.; Brandsma, Joost; Burgel, Pierre-Regis; Carlsson, Gunnar; Carr, Siobhan B.; Carroll, Mary; Edwards, Matt; Escudier, Estelle; Honore, Isabelle; Hunt, David; Jouvion, Gregory; Loebinger, Michel R.; Maitre, Bernard; Morris-Rosendahl, Deborah; Papon, Jean-Francois; Parsons, Camille M.; Patel, Mitali P.; Thomas, N. Simon; Thouvenin, Guillaume; Walker, Woolf T.; Wilson, Robert; Hogg, Claire; Mitchison, Hannah M.; Lucas, Jane S. Share Save Share Save The influence of the conservation of respiratory epithelial samples on ciliary functional analysisBricmont, Noemie; Benchimol, Lionel; Poirrier, Anne-Lise; Boboli, Hedwige; Seghaye, Marie-Christinne; Louis, Renaud; Lefebvre, Philippe; Louis, Bruno; Papon, Jean-Francois; Kempeneers, Celine Share Save Self-reported loss of smell without nasal obstruction to identify COVID-19. The multicenter Coranosmia cohort studyCeron, Dominique Salmon; Bartier, Sophie; Hautefort, Charlotte; Nguyen, Yann; Nevoux, Jerome; Hamel, Anne-Laure; Camhi, Yohan; Canoui-Poitrine, Florence; Verillaud, Benjamin; Slama, Dorsaf; Haim-Boukobza, Stephanie; Sourdeau, Elise; Cantin, Delphine; Corre, Alain; Bryn, Agnes; Etienne, Nicolas; Rozenberg, Flore; Layese, Richard; Papon, Jean-Francois; Bequignon, Emilie Share Save 
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