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Emerging and evolving values in the changing landscape of genomics 基因组学发展变化背景下新兴与演变的价值观 Siermann, Maria; Mohan, Riya; Bunnik, Eline M.; Cambon-Thomsen, Anne; Chadwick, Ruth; Cornel, Martina C.; van Delden, Johannes J. M.; Joly, Yann; Molnar-Gabor, Fruzsina; Jimenez, Maria Pilar Nicolas; Pinxten, Wim; Rial-Sebbag, Emmanuelle; Shabani, Mahsa; Van Steijvoort, Eva; Wallace, Susan E.; Zawati, Ma'n H.; Knoppers, Bartha Maria; Borry, Pascal 分享 收藏
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The European health data space: Too big to succeed? 欧洲健康数据空间: 太大而无法成功？ Marelli, Luca; Stevens, Marthe; Sharon, Tamar; Van Hoyweghen, Ine; Boeckhout, Martin; Colussi, Ilaria; Degelsegger-Marquez, Alexander; El-Sayed, Seliem; Hoeyer, Klaus; van Kessel, Robin; Zajac, Dorota Krekora; Matei, Mihaela; Roda, Sara; Prainsack, Barbara; Schluender, Irene; Shabani, Mahsa; Southerington, Tom 分享 收藏
Reconciling the biomedical data commons and the GDPR: three lessons from the EUCAN ELSI collaboratory 协调生物医学数据共享和GDPR: 来自EUCAN ELSI协作组的三个教训 Bernier, Alexander; Molnar-Gabor, Fruzsina; Knoppers, Bartha M.; Borry, Pascal; Cesar, Priscilla M. D. G.; Devriendt, Thijs; Goisauf, Melanie; Murtagh, Madeleine; Jimenez, Pilar Nicolas; Recuero, Mikel; Rial-Sebbag, Emmanuelle; Shabani, Mahsa; Wilson, Rebecca C.; Zaccagnini, Davide; Maxwell, Lauren 分享 收藏
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Ethics review of big data research: What should stay and what should be reformed? 大数据研究的伦理审视: 留下什么，改革什么？ Ferretti, Agata; Ienca, Marcello; Sheehan, Mark; Blasimme, Alessandro; Dove, Edward S.; Farsides, Bobbie; Friesen, Phoebe; Kahn, Jeff; Karlen, Walter; Kleist, Peter; Liao, S. Matthew; Nebeker, Camille; Samuel, Gabrielle; Shabani, Mahsa; Velarde, Minerva Rivas; Vayena, Effy 分享 收藏
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Toward better governance of human genomic data O'Doherty, Kieran C.; Shabani, Mahsa; Dove, Edward S.; Bentzen, Heidi Beate; Borry, Pascal; Burgess, Michael M.; Chalmers, Don; De Vries, Jantina; Eckstein, Lisa; Fullerton, Stephanie M.; Juengst, Eric; Kato, Kazuto; Kaye, Jane; Knoppers, Bartha Maria; Koenig, Barbara A.; Manson, Spero M.; McGrail, Kimberlyn M.; McGuire, Amy L.; Meslin, Eric M.; Nicol, Dianne; Prainsack, Barbara; Terry, Sharon F.; Thorogood, Adrian; Burke, Wylie 分享 收藏
Public involvement in the governance of population-level biomedical research: unresolved questions and future directions 公众参与人口水平生物医学研究的治理: 未解决的问题和未来方向 Erikainen, Sonja; Friesen, Phoebe; Rand, Leah; Jongsma, Karin; Dunn, Michael; Sorbie, Annie; McCoy, Matthew; Bell, Jessica; Burgess, Michael; Chen, Haidan; Chico, Vicky; Cunningham-Burley, Sarah; Darbyshire, Julie; Dawson, Rebecca; Evans, Andrew; Fahy, Nick; Finlay, Teresa; Frith, Lucy; Goldenberg, Aaron; Hinton, Lisa; Hoppe, Nils; Hughes, Nigel; Koenig, Barbara; Lignou, Sapfo; McGowan, Michelle; Parker, Michael; Prainsack, Barbara; Shabani, Mahsa; Staunton, Ciara; Thompson, Rachel; Varnai, Kinga; Vayena, Effy; Williams, Oli; Williamson, Max; Chan, Sarah; Sheehan, Mark 分享 收藏
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