未登录Time to diagnosis and determinants of diagnostic delays of people living with a rare disease: results of a Rare Barometer retrospective patient survey罕见病患者诊断所需时间及诊断延迟的影响因素:罕见病晴雨表回顾性患者调查结果
Faye, Fatoumata; Crocione, Claudia; de Pena, Roberta Anido; Bellagambi, Simona; Penaloza, Luciana Escati; Hunter, Amy; Jensen, Lene; Oosterwijk, Cor; Schoeters, Eva; de Vicente, Daniel; Faivre, Laurence; Wilbur, Michael; Le Cam, Yann; Dubief, Jessie
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