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S

Sylvia von Mackensen

university medical center hamburg eppendorf

40H指数
176论文数
4.5K被引数
收录论文 83
发表时间
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Hemophilia Severity and Its Association With Mental Health and Health-Related Quality of Life—Results From a Cross-Sectional Multicenter Study
errHaemophilia
IF3
err2026-01-30
err0
errOAAI
errFrancesca Schmitt; Laura Maier; Stefan Lerch; Manuela Albisetti; Alice Trinchero; Lukas Graf; Heinz Hengartner; Pierre Fontana; Nicolas von der Weid; Katrin Scheinemann; Sylvia von Mackensen; Corinna Reichl; Marialuisa Cavelti; Ines Mürner-Lavanchy; Johanna A. Kremer Hovinga; Michael Kaess; Mutlu Kartal-Kaess
err分享
err收藏
Clinical, Obstetric-Gynaecological and HRQoL Data of Female VWD Patients in the WIL-QoL StudyWIL-QoL研究中女性血管性血友病（VWD）患者的临床、产科-妇科及HRQoL数据
errHAEMOPHILIA
IF3
err2025-11-01
err0
PREAI
errHalimeh, Susan; Wermes, Cornelia; Moorthi, Carolin; Fischer, Ronald; Heller, Christine; Miesbach, Wolfgang; Schilling, Freimut H.; Auerswald, Guenter; Mackensen, Sylvia Von
err分享
err收藏
Health-Related Quality of Life in Adult Patients With von Willebrand Disease From Germany: Results of the WIL-QoL Study德国成人血管性血友病患者健康相关生活质量：WIL-QoL研究的结果
errHAEMOPHILIA
IF3
err2025-11-01
err0
errOAAI
errvon Mackensen, Sylvia; Moorthi, Carolin; Fischer, Ronald; Halimeh, Susan; Heller, Christine; Miesbach, Wolfgang; Schilling, Freimut H.; Wermes, Cornelia; Auerswald, Guenter
err分享
err收藏
HAEMFIX: Impact of Switching From SHL-FIX to EHL-FIX in Patients With Haemophilia BHAEMFIX：从SHL-FIX转换为EHL-FIX对B型血友病患者的影响
errHaemophilia
IF3
err2025-10-25
err0
errOAAI
errJasmin Lonardi; Susan Halimeh; Sylvia von Mackensen; Lisa Kleinlein; Juliet Fleischer; Henri Funk; Julia Hölz; Johannes Holzapfel; Sabrina Juranek; Victoria Lieftüchter; Christoph Bidlingmaier; Martin Olivieri
err分享
err收藏
Health-related quality of life in adults with hemophilia B after gene therapy with fidanacogene elaparvovec: Results from the BENEGENE-2 trial接受fidanacogene elaparvovec基因治疗的血友病B患者成年人的健康相关生活质量：BENEGENE-2试验的结果
errJournal of Thrombosis and Haemostasis
IF5
err2025-10-17
err0
PREAI
errKaan Kavakli; Adam Cuker; Laurent Frenzel; Jiaan-Der Wang; Catherine N. Bagot; Fahri Sahin; Huyen Tran; Hazzaa Alzahrani; Davide Matino; Jeremy Rupon; John McKay; Lisa J. Wilcox; Francesca Biondo; Delphine Agathon; Sheena Thakkar; Pengling Sun; Frank Plonski; Sylvia von Mackensen
err分享
err收藏
Health-related quality of life in children with von Willebrand disease: results of the French real-life Willebrand Study Health-related Quality of Life studyvon Willebrand病患儿的健康相关生活质量：法国真实生活Willebrand研究健康相关生活质量研究的结果
errJournal of Thrombosis and Haemostasis
IF5
err2025-05-27
err0
errOAAI
errJenny Goudemand; Sophie Susen; Claire Berger; Sophie Bayart; Hervé Chambost; Fabienne Genre-Volot; Dominique Desprez; Ségolène Claeyssens; Brigitte Pan-Petesch; Annie Harroche; Laurent Ardillon; Agnès Veyradier; Malika Barthez-Toullec; Grégory Marin; Emmanuelle Lagrue; Marie Hélène André-Bonnet; Yohann Repessé; Annie Borel-Derlon; Sylvia von Mackensen
err分享
err收藏
Subjective Physical Performance and Its Determinants in Patients With Haemophilia
errHAEMOPHILIA
IF3
err2025-03-01
err0
errOAAI
errSchmidt, Alexander; Tomschi, Fabian; Moellers, Pia; Bruehl, Marius; von Mackensen, Sylvia; Strauss, Andreas C.; Richter, Heinrich; Oldenburg, Johannes; Hilberg, Thomas
err分享
err收藏
Concizumab prophylaxis in people with hemophilia A or B without inhibitors: patient-reported outcome results from the phase 3 explorer8 study
errRESEARCH AND PRACTICE IN THROMBOSIS AND HAEMOSTASIS
IF3.4
err2025-02-01
err0
errOAAI
errAngchaisuksiri, Pantep; von Mackensen, Sylvia; Apte, Shashikant; Benson, Gary; Eichler, Hermann; Findley, Amy; Matsushita, Tadashi; Tavares, Camila M. Mazini; Ravn, Morten Puggaard; Sathar, Jameela; Martinez, Laura Villarreal; Young, Guy
err分享
err收藏
Concizumab prophylaxis in persons with hemophilia A or B with inhibitors: patient-reported outcome results from the phase 3 explorer7 study
errRESEARCH AND PRACTICE IN THROMBOSIS AND HAEMOSTASIS
IF3.4
err2024-05-01
err4
errOAAI
errTran, Huyen; von Mackensen, Sylvia; Abraham, Aby; Castaman, Giancarlo; Hampton, Kingsley; Knoebl, Paul; Linari, Silvia; Odgaard-Jensen, Jan; Neergaard, Jesper Skov; Stasyshyn, Oleksandra; Zaw, Jay Jay Thaung; Zulfikar, Bulent; Shapiro, Amy
err分享
err收藏
Association of patient, treatment and disease characteristics with patient-reported outcomes: Results of the ECHO Registry患者，治疗和疾病特征与患者报告结果的关联: ECHO注册表的结果
errHAEMOPHILIA
IF3
err2023-11-29
err0
errOAAI
errHay, Charles R. M.; Makris, Michael; Shima, Midori; Nagao, Azusa; Jimenez-Yuste, Victor; Skinner, Mark; Kessler, Craig M.; von Mackensen, Sylvia
err分享
err收藏
The effect of a virtual child disease management programme on burden and social adjustment of caregivers of children with coagulation factor deficiencies
errHAEMOPHILIA
IF3
err2022-10-20
err2
errOAAI
errRambod, Masoume; Pasyar, Nilofar; Parizi, Fatemeh Irannejad; Edraki, Mitra; Khair, Kate; von Mackensen, Sylvia
err分享
err收藏
The effect of emicizumab prophylaxis on long-term, self-reported physical health in persons with haemophilia A without factor VIII inhibitors in the HAVEN 3 and HAVEN 4 studies在HAVEN 3和HAVEN 4研究中，emicizumab预防对无因子VIII抑制剂的a型血友病患者长期自我报告的身体健康的影响
errHAEMOPHILIA
IF3
err2021-06-25
err29
errOAAI
errSkinner, Mark W.; Negrier, Claude; Paz-Priel, Ido; Chebon, Sammy; Jimenez-Yuste, Victor; Callaghan, Michael U.; Lehle, Michaela; Niggli, Markus; Mahlangu, Johnny; Shapiro, Amy; Shima, Midori; Campinha-Bacote, Avrita; Levy, Gallia G.; Oldenburg, Johannes; von Mackensen, Sylvia; Pipe, Steven W.
err分享
err收藏
Health-related quality of life and health status in adolescent and adult people with haemophilia A without factor VIII inhibitors-A non-interventional study
errHAEMOPHILIA
IF3
err2021-02-12
err26
errOAAI
errOldenburg, Johannes; Tran, Huyen; Peyvandi, Flora; Nunez, Ramiro; Trask, Peter; Chebon, Sammy; Mahlangu, Johnny N.; Lehle, Michaela; Jimenez-Yuste, Victor; von Mackensen, Sylvia
err分享
err收藏
Challenges and key lessons from the design and implementation of an international haemophilia registry supported by a pharmaceutical company由一家制药公司支持的国际血友病登记处设计和实施的挑战和关键经验教训
errHAEMOPHILIA
IF3
err2020-10-23
err4
errOAAI
errHay, Charles R. M.; Shima, Midori; Makris, Michael; Jimenez-Yuste, Victor; Oldenburg, Johannes; Fischer, Kathelijn; Iorio, Alfonso; Skinner, Mark W.; Santagostino, Elena; von Mackensen, Sylvia; Kessler, Craig M.
err分享
err收藏
Determining meaningful health-related quality-of-life improvement in persons with haemophilia A using the Haemophilia Quality of Life Questionnaire for Adults (Haem-A-QoL)
errHAEMOPHILIA
IF3
err2020-10-21
err10
errOAAI
errvon Mackensen, Sylvia; Catalani, Olivier; Asikanius, Elina; Paz-Priel, Ido; Lehle, Michaela; Trask, Peter
err分享
err收藏
Health-related quality of life and caregiver burden of emicizumab in children with haemophilia A and factor VIII inhibitors-Results from the HAVEN 2 study患有血友病A和因子VIII抑制剂的儿童的健康相关生活质量和照顾者负担-HAVEN 2研究的结果
errHAEMOPHILIA
IF3
err2020-10-21
err20
errOAAI
errMancuso, Maria Elisa; Mahlangu, Johnny; Sidonio, Robert, Jr.; Trask, Peter; Uguen, Marianne; Chang, Tiffany; Shima, Midori; Young, Guy; Oldenburg, Johannes; von Mackensen, Sylvia
err分享
err收藏
Impact of COVID-19 pandemic on mental health of patients with inherited bleeding disorders in Germany
errHAEMOPHILIA
IF3
err2020-09-15
err7
errOAAI
errvon Mackensen, Sylvia; Halimeh, Susan; Siebert, Manuela; Wermes, Cornelia; Hassenpflug, Wolf; Holstein, Katharina; Olivieri, Martin
err分享
err收藏
Cross-cultural adaptation and validation of Haem-A-QoL in Cote d'Ivoire
errHAEMOPHILIA
IF3
err2020-05-11
err5
PREAI
errLambert, Catherine; Meite, N'Dogomo; Sanogo, Ibrahima; Lobet, Sebastien; von Mackensen, Sylvia; Hermans, Cedric
err分享
err收藏
Heavy menstrual bleeding in women with inherited bleeding disorders患有遗传性出血性疾病的女性月经大量出血
errHAEMOPHILIA
IF3
err2020-05-01
err5
errOAAI
errDjambas Khayat, Claudia; Gouider, Emna; von Mackensen, Sylvia; Abdul Kadir, Rezan
err分享
err收藏
Burden on parents of children with haemophilia: The impact of sociodemographic and child's medical condition
errJOURNAL OF CLINICAL NURSING
IF3.5
err2019-09-03
err15
PREAI
errWestesson, Linda Myrin; Sparud-Lundin, Carina; Baghaei, Fariba; Khair, Kate; von Mackensen, Sylvia; Mora, Mariela Acuna; Wallengren, Catarina
err分享
err收藏

研究方向

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