未登录 Using the Observational Medical Outcomes Partnership Common Data Model for a multi-registry intensive care unit benchmarking federated analysis: lessons learned 使用观察性医疗结果合作伙伴关系通用数据模型进行多注册重症监护病房基准联邦分析：经验教训 Rashan, Aasiyah; Puttmann, Daniel P.; de Keizer, Nicolette F.; Dongelmans, Dave A.; Cornet, Ronald; Ranzani, Otavio; Waweru-Siika, Wangari; Smith, Matthew; Harris, Steve; Beane, Abi; Bakhshi-Raiez, Ferishta 分享 收藏
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Exploring the Impact of the Multimodal CAPABLE eHealth Intervention on Health-Related Quality of Life in Patients With Melanoma Undergoing Immune-Checkpoint Inhibition: Prospective Pilot Study Fraterman, Itske; Sacchi, Lucia; Mallo, Henk; Tibollo, Valentina; Glaser, Savannah Lucia Catherina; Medlock, Stephanie; Cornet, Ronald; Gabetta, Matteo; Hisko, Vitali; Khadakou, Vadzim; Barkan, Ella; Del Campo, Laura; Glasspool, David; Kogan, Alexandra; Lanzola, Giordano; Leizer, Roy; Ottaviano, Manuel; Peleg, Mor; Sniatala, Konrad; Lisowska, Aneta; Wilk, Szymon; Parimbelli, Enea; Quaglini, Silvana; Rizzo, Mimma; Locati, Laura Deborah; Boekhout, Annelies; Poll-Franse, Lonneke V. van de; Wilgenhof, Sofie 分享 收藏
Development of the CDISC Pediatrics User Guide: a CDISC and conect4children collaboration Owen, John; Sen, Anando; Aurich, Beate; Engel, Corinna; Cavallaro, Giacomo; Degraeuwe, Eva; Kalra, Dipak; Cornet, Ronald; Walsh, Melissa; Berkery, Teresa; Palmeri, Avril; Mahler, Fenna; Malik, Salma; Persijn, Laura; Amadi, Chima; Thuet, Jacques; Woodworth, Simon; Nally, Sinead; Leary, Rebecca; Marshall, Richard; Straub, Volker 分享 收藏
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Towards FAIRification of sensitive and fragmented rare disease patient data: challenges and solutions in European reference network registries 走向敏感和零散的罕见疾病患者数据的fairiification: 欧洲参考网络注册中心的挑战和解决方案 Vieira, Bruna dos Santos; Bernabe, Cesar H.; Zhang, Shuxin; Abaza, Haitham; Benis, Nirupama; Camara, Alberto; Cornet, Ronald; Le Cornec, Clemence M. A.; 't Hoen, Peter A. C.; Schaefer, Franz; van der Velde, K. Joeri; Swertz, Morris A.; Wilkinson, Mark D.; Jacobsen, Annika; Roos, Marco 分享 收藏
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Internalizing problems before and during the COVID-19 pandemic in independent samples of Dutch children and adolescents with and without pre-existing mental health problems 在新型冠状病毒肺炎大流行之前和期间，有或没有预先存在的精神卫生问题的荷兰儿童和青少年的独立样本中内化问题 Fischer, Karen; Tieskens, Jacintha M.; Luijten, Michiel A. J.; Zijlmans, Josjan; van Oers, Hedy A.; de Groot, Rowdy; van der Doelen, Daniel; van Ewijk, Hanneke; Klip, Helen; van der Lans, Rikkert M.; De Meyer, Ronald; van der Mheen, Malindi; van Muilekom, Maud M.; Ruisch, I. Hyun; Teela, Lorynn; van den Berg, Germie; Bruining, Hilgo; van der Rijken, Rachel; Buitelaar, Jan; Hoekstra, Pieter J.; Lindauer, Ramon; Oostrom, Kim J.; Staal, Wouter; Vermeiren, Robert; Cornet, Ronald; Haverman, Lotte; Bartels, Meike; Polderman, Tinca J. C.; Popma, Arne 分享 收藏
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Use of Clinical Data Interchange Standards Consortium (CDISC) Standards for Real-world Data: Expert Perspectives From a Qualitative Delphi Survey 将临床数据交换标准联盟 (CDISC) 标准用于实际数据: 定性Delphi调查的专家观点 Facile, Rhonda; Muhlbradt, Erin Elizabeth; Gong, Mengchun; Li, Qingna; Popat, Vaishali; Petavy, Frank; Cornet, Ronald; Ruan, Yaoping; Koide, Daisuke; Saito, Toshiki, I; Hume, Sam; Rockhold, Frank; Bao, Wenjun; Dubman, Sue; Wurst, Barbara Jauregui 分享 收藏
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De-novo FAIRification via an Electronic Data Capture system by automated transformation of filled electronic Case Report Forms into machine-readable data Kersloot, Martijn G.; Jacobsen, Annika; Groenen, Karlijn H. J.; Vieira, Bruna dos Santos; Kaliyaperumal, Rajaram; Abu-Hanna, Ameen; Cornet, Ronald; t' Hoen, Peter A. C.; Roos, Marco; Kool, Leo Schultze; Arts, Derk L. 分享 收藏
The de novo FAIRification process of a registry for vascular anomalies 血管异常登记处的重新分类过程 Groenen, Karlijn H. J.; Jacobsen, Annika; Kersloot, Martijn G.; dos Santos Vieira, Bruna; van Enckevort, Esther; Kaliyaperumal, Rajaram; Arts, Derk L.; 't Hoen, Peter A. C.; Cornet, Ronald; Roos, Marco; Kool, Leo Schultze 分享 收藏
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