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The Genetic Discrimination Observatory: confronting novel issues in genetic discrimination Joly, Yann; Huerne, Katherine; Arych, Mykhailo; Bombard, Yvonne; De Paor, Aisling; Dove, Edward S.; Moreno, Palmira Granados; Ho, Calvin W. L.; Ho, Chih-Hsing; Van Hoyweghen, Ine; Kim, Hannah; Lebret, Audrey; Minssen, Timo; Cathaoir, Katharina O.; Prince, Anya E. R.; Nair, Athira P. S.; Otlowski, Margaret; Pepper, Michael S.; Sladek, Rob; Song, Lingqiao; Voigt, Torsten H.; Zawati, Ma'n H.; Dalpe, Gratien 分享 收藏
GA4GH: International policies and standards for data sharing across genomic research and healthcare GA4GH: 跨基因组研究和医疗保健的数据共享的国际政策和标准 Rehm, Heidi L.; Page, Angela J. H.; Smith, Lindsay; Adams, Jeremy B.; Alterovitz, Gil; Babb, Lawrence J.; Barkley, Maxmillian P.; Baudis, Michael; Beauvais, Michael J. S.; Beck, Tim; Beckmann, Jacques S.; Beltran, Sergi; Bernick, David; Bernier, Alexander; Bonfield, James K.; Boughtwood, Tiffany F.; Bourque, Guillaume; Bowers, Sarion R.; Brookes, Anthony J.; Brudno, Michael; Brush, Matthew H.; Bujold, David; Burdett, Tony; Buske, Orion J.; Cabili, Moran N.; Cameron, Daniel L.; Carroll, Robert J.; Casas-Silva, Esmeralda; Chakravarty, Debyani; Chaudhari, Bimal P.; Chen, Shu Hui; Cherry, J. Michael; Chung, Justina; Cline, Melissa; Clissold, Hayley L.; Cook-Deegan, Robert M.; Courtot, Melanie; Cunningham, Fiona; Cupak, Miro; Davies, Robert M.; Denisko, Danielle; Doerr, Megan J.; Dolman, Lena I.; Dove, Edward S.; Dursi, L. Jonathan; Dyke, Stephanie O. M.; Eddy, James A.; Eilbeck, Karen; Ellrott, Kyle P.; Fairley, Susan; Fakhro, Khalid A.; Firth, Helen V.; Fitzsimons, Michael S.; Fiume, Marc; Flicek, Paul; Fore, Ian M.; Freeberg, Mallory A.; Freimuth, Robert R.; Fromont, Lauren A.; Fuerth, Jonathan; Gaff, Clara L.; Gan, Weiniu; Ghanaim, Elena M.; Glazer, David; Green, Robert C.; Griffith, Malachi; Griffith, Obi L.; Grossman, Robert L.; Groza, Tudor; Auvil, Jaime M. Guidry; Guigo, Roderic; Gupta, Dipayan; Haendel, Melissa A.; Hamosh, Ada; Hansen, David P.; Hart, Reece K.; Hartley, Dean Mitchell; Haussler, David; Hendricks-Sturrup, Rachele M.; Ho, Calvin W. L.; Hobb, Ashley E.; Hoffman, Michael M.; Hofmann, Oliver M.; Holub, Petr; Hsu, Jacob Shujui; Hubaux, Jean-Pierre; Hunt, Sarah E.; Husami, Ammar; Jacobsen, Julius O.; Jamuar, Saumya S.; Janes, Elizabeth L.; Jeanson, Francis; Jene, Aina; Johns, Amber L.; Joly, Yann; Jones, Steven J. M.; Kanitz, Alexander; Kato, Kazuto; Keane, Thomas M.; Kekesi-Lafrance, Kristina; Kelleher, Jerome; Kerry, Giselle; Khor, Seik-Soon; Knoppers, Bartha M.; Konopko, Melissa A.; Kosaki, Kenjiro; Kuba, Martin; Lawson, Jonathan; Leinonen, Rasko; Li, Stephanie; Lin, Michael F.; Linden, Mikael; Liu, Xianglin; Liyanage, Isuru Udara; Lopez, Javier; Lucassen, Anneke M.; Lukowski, Michael; Mann, Alice L.; Marshall, John; Mattioni, Michele; Metke-Jimenez, Alejandro; Middleton, Anna; Milne, Richard J.; Molnar-Gabor, Fruzsina; Mulder, Nicola; Munoz-Torres, Monica C.; Nag, Rishi; Nakagawa, Hidewaki; Nasir, Jamal; Navarro, Arcadi; Nelson, Tristan H.; Niewielska, Ania; Nisselle, Amy; Niu, Jeffrey; Nyronen, Tommi H.; O'Connor, Brian D.; Oesterle, Sabine; Ogishima, Soichi; Wang, Vivian Ota; Paglione, Laura A. D.; Palumbo, Emilio; Parkinson, Helen E.; Philippakis, Anthony A.; Pizarro, Angel D.; Prlic, Andreas; Rambla, Jordi; Rendon, Augusto; Rider, Renee A.; Robinson, Peter N.; Rodarmer, Kurt W.; Rodriguez, Laura Lyman; Rubin, Alan F.; Rueda, Manuel; Rushton, Gregory A.; Ryan, Rosalyn S.; Saunders, Gary I.; Schuilenburg, Helen; Schwede, Torsten; Scollen, Serena; Senf, Alexander; Sheffield, Nathan C.; Skantharajah, Neerjah; Smith, Albert V.; Sofia, Heidi J.; Spalding, Dylan; Spurdle, Amanda B.; Stark, Zornitza; Stein, Lincoln D.; Suematsu, Makoto; Tan, Patrick; Tedds, Jonathan A.; Thomson, Alastair A.; Thorogood, Adrian; Tickle, Timothy L.; Tokunaga, Katsushi; Tomroos, Juha; Torrents, David; Upchurch, Sean; Valencia, Alfonso; Guimera, Roman Valls; Vamathevan, Jessica; Varma, Susheel; Vears, Danya F.; Viner, Coby; Voisin, Craig; Wagner, Alex H.; Wallace, Susan E.; Walsh, Brian P.; Williams, Marc S.; Winkler, Eva C.; Wold, Barbara J.; Wood, Grant M.; Woolley, J. Patrick; Yamasaki, Chisato; Yates, Andrew D.; Yung, Christina K.; Zass, Lyndon J.; Zaytseva, Ksenia; Zhang, Junjun; Goodhand, Peter; North, Kathryn; Birney, Ewan 分享 收藏
International federation of genomic medicine databases using GA4GH standards Thorogood, Adrian; Rehm, Heidi L.; Goodhand, Peter; Page, Angela J. H.; Joly, Yann; Baudis, Michael; Rambla, Jordi; Navarro, Arcadi; Nyronen, Tommi H.; Linden, Mikael; Dove, Edward S.; Fiume, Marc; Brudno, Michael; Cline, Melissa S.; Birney, Ewan 分享 收藏
Ethics review of big data research: What should stay and what should be reformed? 大数据研究的伦理审视: 留下什么，改革什么？ Ferretti, Agata; Ienca, Marcello; Sheehan, Mark; Blasimme, Alessandro; Dove, Edward S.; Farsides, Bobbie; Friesen, Phoebe; Kahn, Jeff; Karlen, Walter; Kleist, Peter; Liao, S. Matthew; Nebeker, Camille; Samuel, Gabrielle; Shabani, Mahsa; Velarde, Minerva Rivas; Vayena, Effy 分享 收藏
A Mycobacterial Systems Resource for the Research Community 研究社区的分枝杆菌系统资源 Judd, J. A.; Canestrari, J.; Clark, R.; Joseph, A.; Lapierre, P.; Lasek-Nesselquist, E.; Mir, M.; Palumbo, M.; Smith, C.; Stone, M.; Upadhyay, A.; Wirth, S. E.; Dedrick, R. M.; Meier, C. G.; Russell, D. A.; Dills, A.; Dove, E.; Kester, J.; Wolf, I. D.; Zhu, J.; Rubin, E. R.; Fortune, S.; Hatfull, G. F.; Gray, T. A.; Wade, J. T.; Derbyshire, K. M. 分享 收藏
Toward better governance of human genomic data 更好地治理人类基因组数据 O'Doherty, Kieran C.; Shabani, Mahsa; Dove, Edward S.; Bentzen, Heidi Beate; Borry, Pascal; Burgess, Michael M.; Chalmers, Don; De Vries, Jantina; Eckstein, Lisa; Fullerton, Stephanie M.; Juengst, Eric; Kato, Kazuto; Kaye, Jane; Knoppers, Bartha Maria; Koenig, Barbara A.; Manson, Spero M.; McGrail, Kimberlyn M.; McGuire, Amy L.; Meslin, Eric M.; Nicol, Dianne; Prainsack, Barbara; Terry, Sharon F.; Thorogood, Adrian; Burke, Wylie 分享 收藏
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Are Requirements to Deposit Data in Research Repositories Compatible With the European Union's General Data Protection Regulation? 将数据存入研究存储库的要求是否符合欧盟的《通用数据保护条例》？ Mascalzoni, Deborah; Bentzen, Heidi Beate; Budin-Ljosne, Isabelle; Bygrave, Lee Andrew; Bell, Jessica; Dove, Edward S.; Fuchsberger, Christian; Hveem, Kristian; Mayrhofer, Michaela Th.; Meraviglia, Viviana; O'Brien, David R.; Pattaro, Cristian; Pramstaller, Peter P.; Rakic, Vojin; Rossini, Alessandra; Shabani, Mahsa; Svantesson, Dan Jerker B.; Tomasi, Marta; Ursin, Lars; Wjst, Matthias; Kaye, Jane 分享 收藏
Better governance, better access: practising responsible data sharing in the METADAC governance infrastructure 更好的治理，更好的访问: 在METADAC治理基础架构中实践负责任的数据共享 Murtagh, Madeleine J.; Blell, Mwenza T.; Butters, Olly W.; Cowley, Lorraine; Dove, Edward S.; Goodman, Alissa; Griggs, Rebecca L.; Hall, Alison; Hallowell, Nina; Kumari, Meena; Mangino, Massimo; Maughan, Barbara; Mills, Melinda C.; Minion, Joel T.; Murphy, Tom; Prior, Gillian; Suderman, Matthew; Ring, Susan M.; Rogers, Nina T.; Roberts, Stephanie J.; Van der Straeten, Catherine; Viney, Will; Wiltshire, Deborah; Wong, Andrew; Walker, Neil; Burton, Paul R. 分享 收藏
Including all voices in international data-sharing governance 将所有声音纳入国际数据共享治理 Kaye, Jane; Terry, Sharon F.; Juengst, Eric; Coy, Sarah; Harris, Jennifer R.; Chalmers, Don; Dove, Edward S.; Budin-Ljosne, Isabelle; Adebamowo, Clement; Ogbe, Emilomo; Bezuidenhout, Louise; Morrison, Michael; Minion, Joel T.; Murtagh, Madeleine J.; Minari, Jusaku; Teare, Harriet; Isasi, Rosario; Kato, Kazuto; Rial-Sebbag, Emmanuelle; Marshall, Patricia; Koenig, Barbara; Cambon-Thomsen, Anne 分享 收藏
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International Charter of principles for sharing bio-specimens and data (vol 23, pg 721, 2015) Mascalzoni, Deborah; Dove, Edward S.; Rubinstein, Yaffa; Dawkins, Hugh J. S.; Kole, Anna; McCormack, Pauline; Woods, Simon; Riess, Olaf; Schaefer, Franz; Lochmuller, Hanns; Knoppers, Bartha M.; Hansson, Mats 分享 收藏
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