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HELIOS Action: Advancing research, education, and equity in hemoglobinopathies across Europe and beyond HELIOS行动计划：推动欧洲及全球范围的血红蛋白病研究、教育和公平。 Chatzimatthaiou, Sotiroula; Bonifazi, Fedele; Gimbert, Anna C.; Colombatti, Raffaella; Cremonesi, Francesco; Glenthoj, Andreas; Mezzalira, Elisabetta; Stephanou, Coralea; Traeger-synodinos, Jan; Antic, Darko; Durmaz, Burak; Gavriilaki, Eleni; Inusa, Baba; Landi, Annalisa; Pellegrini, Mariangela; Basile, Francesca; Muth, Stephanie; Cario, Holger; Katsantoni, Eleni; Ruhluel, Dilem; Lederer, Carsten Werner; Manu-pereira, Maria Del Mar; Kountouris, Petros 分享 收藏
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The genetic dissection of fetal haemoglobin persistence in sickle cell disease in Nigeria Ojewunmi, Oyesola O.; Adeyemo, Titilope A.; Oyetunji, Ajoke, I; Inyang, Bassey; Akinrindoye, Afolashade; Mkumbe, Baraka S.; Gardner, Kate; Rooks, Helen; Brewin, John; Patel, Hamel; Lee, Sang Hyuck; Chung, Raymond; Rashkin, Sara; Kang, Guolian; Chianumba, Reuben; Sangeda, Raphael; Mwita, Liberata; Isa, Hezekiah; Agumadu, Uche-Nnebe; Ekong, Rosemary; Faruk, Jamilu A.; Jamoh, Bello Y.; Adebiyi, Niyi M.; Umar, Ismail A.; Hassan, Abdulaziz; Grace, Christopher; Goel, Anuj; Inusa, Baba P. D.; Falchi, Mario; Nkya, Siana; Makani, Julie; Ahmad, Hafsat R.; Nnodu, Obiageli; Strouboulis, John; Menzel, Stephan 分享 收藏
Pain Frequency and Health Care Utilization Patterns in Women with Sickle Cell Disease Experiencing Menstruation-Associated Pain Crises 经历月经相关疼痛危机的镰状细胞病女性的疼痛频率和医疗保健利用模式 Segbefia, Catherine; Campbell, Jillian; Tartaglione, Immacolata; Asare, Eugenia Vicky; Andemariam, Biree; Zempsky, William; Colombatti, Raffaella; Boatemaa, Gifty Dankwah; Boruchov, Donna; Rao, Sudha; Piccone, Connie M.; Smith, Ashya; Haile, Haikel; Kim, Esther; Wilson, Samuel; Farooq, Fatimah; Urbonya, Rebekah; Rivers, Angela; Manwani, Deepa; Gai, Jiaxiang; Sey, Fredericka; Inusa, Baba; Antwi-Boasiako, Charles; Strunk, Crawford; Campbell, Andrew D. 分享 收藏
Sickle cell disease: embedding patient participation into an international conference can transform the role of lived experience Pellegrini, Mariangela; Chakravorty, Subarna; Pereira, Maria del Mar Manu; Gulbis, Beatrice; Gilmour-Hamilton, Catriona; Hayes, Sandy; de Montalembert, Mariane; Inusa, Baba Psalm Duniya; Colombatti, Raffaella; Roy, Noemi B. A. 分享 收藏
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Efficacy, safety, and pharmacokinetics of a new, ready-to-use, liquid hydroxyurea in children with sickle cell anemia Rankine-Mullings, Angela; Keenan, Russell; Chakravorty, Subarna; Inusa, Baba; Telfer, Paul; Velangi, Mark; Ware, Russell E.; Moss, Jon J.; Lloyd, Adam L.; Edwards, Sarah; Mulla, Hussain 分享 收藏
Structural connectivity mediates the relationship between blood oxygenation and cognitive function in sickle cell anemia 结构连接介导镰状细胞性贫血患者血液氧合与认知功能的关系 Clayden, Jonathan D.; Stotesbury, Hanne; Kawadler, Jamie M.; Slee, April; Kolbel, Melanie; Saunders, Dawn E.; Hood, Anna M.; Wilkey, Olu; Layton, Mark; Inusa, Baba; Pelidis, Maria; Chakravorty, Subarna; Rees, David C.; Howard, Jo; Awogbade, Moji; Liossi, Christina; Kirkham, Fenella J.; Clark, Chris A. 分享 收藏
Deferiprone for transfusional iron overload in sickle cell disease and other anemias: open-label study of up to 3 years Elalfy, Mohsen S.; Hamdy, Mona; El-Beshlawy, Amal; Ebeid, Fatma S. E.; Badr, Mohamed; Kanter, Julie; Inusa, Baba; Adly, Amira A. M.; Williams, Suzan; Kilinc, Yurdanur; Lee, David; Fradette, Caroline; Rozova, Anna; Temin, Noemi Toiber; Tricta, Fernando; Kwiatkowski, Janet L. 分享 收藏
The Consortium on Newborn Screening in Africa for sickle cell disease: study rationale and methodology Green, Nancy S.; Zapfel, Andrew; Nnodu, Obiageli E.; Franklin, Patience; Tubman, Venee N.; Chirande, Lulu; Kiyaga, Charles; Chunda-Liyoka, Catherine; Awuonda, Bernard; Ohene-Frempong, Kwaku; Inusa, Baba P. D.; Ware, Russell E.; Odame, Isaac; Ambrose, Emmanuela E.; Dogara, Livingstone G.; Oron, Assaf P.; Willett, Chase; Thompson, Alexis A.; Berliner, Nancy; Coetzer, Theresa L.; Novelli, Enrico M. 分享 收藏
The impact of urbanization and wealth on house dust mite sensitization in children from north-central Nigeria Zuiani, Chiara; Arigliani, Michele; Zubair, Ramatu; Dogara, Livingstone Gayus; Castriotta, Luigi; Sunday, Ashel Dache; Audu, Reward Christopher; Dadan-Garba, Habibah; Sani, Zakary; Inusa, Baba; Cogo, Paola 分享 收藏
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Individual Watershed Areas in Sickle Cell Anemia: An Arterial Spin Labeling Study 镰状细胞性贫血的各个分水岭区域: 动脉自旋标记研究 Stotesbury, Hanne; Hales, Patrick W.; Hood, Anna M.; Koelbel, Melanie; Kawadler, Jamie M.; Saunders, Dawn E.; Sahota, Sati; Rees, David C.; Wilkey, Olu; Layton, Mark; Pelidis, Maria; Inusa, Baba P. D.; Howard, Jo; Chakravorty, Subarna; Clark, Chris A.; Kirkham, Fenella J. 分享 收藏
Deferiprone vs deferoxamine for transfusional iron overload in SCD and other anemias: a randomized, open-label noninferiority study Kwiatkowski, Janet L.; Hamdy, Mona; El-Beshlawy, Amal; Ebeid, Fatma S. E.; Badr, Mohammed; Alshehri, Abdulrahman; Kanter, Julie; Inusa, Baba; Adly, Amira A. M.; Williams, Suzan; Kilinc, Yurdanur; Lee, David; Tricta, Fernando; Elalfy, Mohsen S. 分享 收藏
Venous cerebral blood flow quantification and cognition in patients with sickle cell anemia 镰状细胞性贫血患者的静脉脑血流定量和认知 Stotesbury, Hanne; Hales, Patrick W.; Koelbel, Melanie; Hood, Anna M.; Kawadler, Jamie M.; Saunders, Dawn E.; Sahota, Sati; Rees, David C.; Wilkey, Olu; Layton, Mark; Pelidis, Maria; Inusa, Baba P. D.; Howard, Jo; Chakravorty, Subarna; Clark, Chris A.; Kirkham, Fenella J. 分享 收藏
The International Hemoglobinopathy Research Network (INHERENT): An international initiative to study the role of genetic modifiers in hemoglobinopathies Kountouris, Petros; Stephanou, Coralea; Archer, Natasha; Bonifazi, Fedele; Giannuzzi, Viviana; Kuo, Kevin H. M.; Maggio, Aurelio; Makani, Julie; Manu-Pereira, Maria del Mar; Michailidou, Kyriaki; Nkya, Siana; Nnodu, Obiageli E.; Trompeter, Sara; Tshilolo, Leon; Wonkam, Ambroise; Zilfalil, Bin Alwi; Inusa, Baba P. D.; Kleanthous, Marina 分享 收藏
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Impact of sickle cell disease on patients' daily lives, symptoms reported, and disease management strategies: Results from the international Sickle Cell World Assessment Survey (SWAY) Osunkwo, Ifeyinwa; Andemariam, Biree; Minniti, Caterina P.; Inusa, Baba P. D.; El Rassi, Fuad; Francis-Gibson, Beverley; Nero, Alecia; Trimnell, Cassandra; Abboud, Miguel R.; Arlet, Jean-Benoit; Colombatti, Raffaella; de Montalembert, Mariane; Jain, Suman; Jastaniah, Wasil; Nur, Erfan; Pita, Marimilia; DeBonnett, Laurie; Ramscar, Nicholas; Bailey, Tom; Rajkovic-Hooley, Olivera; James, John 分享 收藏
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