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Myra Bluebond-Langner

ucl great ormond street institute of child health
H指数:33
被引数:4,277

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Involving Nonspeaking and Speaking Children in Clinical Encounters: An Observational Study of Real-World Clinical Encounters

涉及无声儿童和发声儿童的临床接触:一项真实世界临床接触的观察研究

2025-12-010
PRE
PAEDIATRIC LOW-GRADE GLIOMA (PLGG): UNDER THE KNIFE FOR A BETTER QUALITY OF LIFE. EVALUATION & PROGNOSTICATION OF LONG-TERM PLGG SURVIVOR FUNCTIONAL AND QUALITY OF LIFE OUTCOMES

儿童低级别胶质瘤(PLGG):手术以提高生活质量。评估与预测长期PLGG幸存者的功能及生活质量结局。

2025-09-020
OAAI
What Constitutes High-Quality Paediatric Palliative Care? A Qualitative Exploration of the Perspectives of Children, Young People, and Parents

什么构成高质量儿科姑息治疗?对儿童、青少年和父母观点的定性探索

2025-05-250
OA
Outcomes used to measure the clinical application of neonatal palliative and/or end-of-life care in neonatal settings: a systematic review

用于衡量新生儿姑息治疗和/或终末期护理在新生儿环境中的临床应用的结果: 系统评价

2025-01-310
PRE
PAEDIATRIC LOW-GRADE GLIOMA (PLGG): A LIFELONG DISEASE THAT BEGINS IN CHILDHOOD. EVALUATION AND PROGNOSTICATION OF LONG-TERM PLGG SURVIVOR FUNCTIONAL AND QUALITY OF LIFE OUTCOMES

儿科低度神经胶质瘤 (PLGG): 一种始于童年的终身疾病。长期PLGG幸存者功能和生活质量结果的评估和预测

2024-06-180
OAAI
What are the anticipated benefits, risks, barriers and facilitators to implementing person-centred outcome measures into routine care for children and young people with life-limiting and life-threatening conditions? A qualitative interview study with key stakeholders

将以人为本的结果措施实施到有生命限制和生命威胁的儿童和年轻人的日常护理中,预期的好处、风险、障碍和促进因素是什么?对关键利益相关者的定性访谈研究

2024-03-133
OAAI
'My life is a mess but I cope': An analysis of the language children and young people use to describe their own life-limiting or life-threatening condition

“我的生活一团糟,但我应付”: 对儿童和年轻人用来描述自己的生命限制或危及生命的状况的语言的分析

2024-03-042
OAAI
Achieving consensus on priority items for paediatric palliative care outcome measurement: Results from a modified Delphi survey, engagement with a children's research involvement group and expert item generation

在儿科姑息治疗结果测量的优先项目上达成共识: 修改后的Delphi调查,与儿童研究参与小组的互动和专家项目生成的结果

2023-10-184
OAAI
Design and Administration of Patient-Centred Outcome Measures: The Perspectives of Children and Young People with Life-Limiting or Life-Threatening Conditions and Their Family Members

以患者为中心的结果测量的设计和管理: 具有生命限制或危及生命的条件的儿童和年轻人及其家庭成员的观点

2023-05-236
OAAI
COVID-19: Impact on Pediatric Palliative Care

新型冠状病毒肺炎: 对儿科姑息治疗的影响

2022-07-016
OAAI