未登录 Genomic sequencing in diverse and underserved pediatric populations: Parent perspectives on understanding, uncertainty, psychosocial impact, and personal utility of results 在多样化和弱势儿童人群中的基因组测序：家长对结果的理解、不确定性、心理社会影响和个人效用观点 Biesecker, Barbara B.; Ackerman, Sara L.; Brothers, Kyle B.; East, Kelly M.; Foreman, Ann Katherine M.; Hindorff, Lucia A.; Horowitz, Carol R.; Jarvik, Gail P.; Knight, Sara J.; Leo, Michael C.; Patrick, Donald L.; Rini, Christine; Robinson, Jill O.; Sahin-Hodoglugil, Nuriye Nalan; Slavotinek, Anne; Suckiel, Sabrina A.; Veenstra, David L.; Zinberg, Randi E.; Hunter, Jessica Ezzell 分享 收藏
Measuring perceived utility of genomic sequencing: Development and validation of the GENEtic Utility (GENE-U) scale for adult screening Smith, Hadley Stevens; Rubanovich, Caryn Kseniya; Robinson, Jill Oliver; Levchenko, Ariel N.; Classen, Sarah A.; Malek, Janet; Buchanan, Adam H.; Biesecker, Barbara; Brothers, Kyle B.; Wilfond, Benjamin S.; Rini, Christine; Bloss, Cinnamon S.; McGuire, Amy L.; Knight, Sara J. 分享 收藏
Measuring perceived utility of genomic sequencing: Development and validation of the GENEtic Utility (GENE-U) scale for pediatric diagnostic testing Smith, Hadley Stevens; Rubanovich, Caryn Kseniya; Robinson, Jill Oliver; Levchenko, Ariel N.; Classen, Sarah A.; Malek, Janet; Biesecker, Barbara; Brothers, Kyle B.; Wilfond, Benjamin S.; Rini, Christine; Knight, Sara J.; McGuire, Amy L.; Bloss, Cinnamon S. 分享 收藏
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Evaluation of mailed results versus telephone disclosure of normal cancer genetic test results in a low-risk underserved population Gilmore, Marian J.; Leo, Michael C.; Amendola, Laura M.; Goddard, Katrina A. B.; Hunter, Jessica Ezzell; Joseph, Galen; Kauffman, Tia L.; Rolf, Bradley; Shuster, Elizabeth; Zepp, Jamilyn M.; Wilfond, Benjamin S.; Biesecker, Barbara B. 分享 收藏
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An accessible, relational, inclusive, and actionable (ARIA) model of genetic counseling compared with usual care: Results of a randomized controlled trial Joseph, Galen; Leo, Michael C.; Riddle, Leslie; Guerra, Claudia; Amendola, Laura M.; Gilmore, Marian J.; Rolf, Bradley A.; Dorschner, Michael O.; Zepp, Jamilyn; Biesecker, Barbara B.; Caruncho, Mikaella; Hunter, Jessica Ezzell; Keast, Erin; Lewis, Hannah S.; Duenas, Devan; Kauffman, Tia; Bulkley, Joanna E.; Anderson, Katherine P.; Jarvik, Gail P.; Goddard, Katrina A. B.; Wilfond, Benjamin S. 分享 收藏
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ORCA, a values-based decision aid for selecting additional findings from genomic sequencing in adults: Efficacy results from a randomized trial Liles, Elizabeth G.; Leo, Michael C.; Freed, Amanda S.; Porter, Kathryn M.; Zepp, Jamilyn M.; Kauffman, Tia L.; Keast, Erin; McMullen, Carmit K.; Gruss, Inga; Biesecker, Barbara B.; Muessig, Kristin R.; Eubanks, Donna J.; Amendola, Laura M.; Dorschner, Michael O.; Rolf, Bradley A.; Jarvik, Gail P.; Goddard, Katrina A. B.; Wilfond, Benjamin S. 分享 收藏
Psychological Outcomes in Advanced Cancer Patients After Receiving Genomic Tumor Profiling Results Vatter, Sabina; Schlub, Timothy E.; Napier, Christine E.; Best, Megan C.; Bartley, Nicci; Juraskova, Ilona; Meiser, Bettina; Ballinger, Mandy L.; Biesecker, Barbara B.; Goldstein, David; Thomas, David M.; Butow, Phyllis 分享 收藏
Preferences for return of germline genome sequencing results for cancer patients and their genetic relatives in a research setting Best, Megan C.; Butow, Phyllis; Savard, Jacqueline; Jacobs, Chris; Bartley, Nicole; Davies, Grace; Napier, Christine E.; Ballinger, Mandy L.; Thomas, David M.; Biesecker, Barbara; Tucker, Katherine M.; Juraskova, Ilona; Meiser, Bettina; Schlub, Timothy; Newson, Ainsley J. 分享 收藏
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Perceived Utility of Genomic Sequencing: Qualitative Analysis and Synthesis of a Conceptual Model to Inform Patient-Centered Instrument Development Smith, Hadley Stevens; Morain, Stephanie R.; Robinson, Jill Oliver; Canfield, Isabel; Malek, Janet; Rubanovich, Caryn Kseniya; Bloss, Cinnamon S.; Ackerman, Sara L.; Biesecker, Barbara; Brothers, Kyle B.; Goytia, Crispin N.; Horowitz, Carol R.; Knight, Sara J.; Koenig, Barbara; Kraft, Stephanie A.; Outram, Simon; Rini, Christine; Shipman, Kelly J.; Waltz, Margaret; Wilfond, Benjamin; McGuire, Amy L. 分享 收藏
Longitudinal patterns in fear of cancer progression in patients with rare, advanced cancers undergoing comprehensive tumour genomic profiling 接受全面肿瘤基因组分析的罕见，晚期癌症患者对癌症进展的恐惧的纵向模式 Butow, Phyllis; Muller, Fabiola; Napier, Christine E.; Bartley, Nicci; Ballinger, Mandy L.; Biesecker, Barbara; Juraskova, Ilona; Meiser, Bettina; Schlub, Timothy E.; Thomas, David M.; Goldstein, David; Best, Megan C. 分享 收藏
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A behavior-theoretic evaluation of values clarification on parental beliefs and intentions toward genomic sequencing for newborns Paquin, Ryan S.; Peinado, Susana; Lewis, Megan A.; Biesecker, Barbara B.; Rini, Christine; Roche, Myra; Butterfield, Rita M.; Powell, Cynthia M.; Berg, Jonathan S.; Bailey Jr., Donald B. 分享 收藏
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