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Marinka Twilt

Alberta Children's Hospital Research Institute
H指数:41
被引数:5,142

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Validation of Patient-Reported Outcomes Measurement Information System (PROMIS) Pediatric Measures for Children With Chronic Nonbacterial Osteomyelitis

验证患者报告结局测量信息系统(PROMIS)儿科测量工具在慢性非细菌性骨髓炎患儿中的应用

2026-09-100
OAAI
Clinical Features and Outcome Measures Across Still Disease (Systemic Juvenile Idiopathic Arthritis and Adult-Onset Still Disease) Cohorts Worldwide: A Systematic Literature Review

全球范围内Still病(系统性幼年特发性关节炎和成人发病Still病)队列的临床特征与结局指标:一项系统文献综述

2026-02-012
PRE
Characteristics Associated With EuroLupus Versus Modified National Institutes of Health Cyclophosphamide Regimen Use in Children and Young Adults With Lupus Nephritis

与儿童及年轻成人狼疮肾炎患者使用EuroLupus方案相比使用改良美国国立卫生研究院环磷酰胺方案相关的特征

2025-11-260
OAAI
Identifying Domains for CNO and SAPHO: A scoping review to create domains from existing outcomes by the OMERACT CNO and SAPHO working group

识别CNO和SAPHO的领域:一项由OMERACT CNO和SAPHO工作组通过现有结局创建领域的范围综述

2025-11-130
PRE
VALIDATION OF PATIENT-REPORTED OUTCOMES MEASUREMENT INFORMATION SYSTEM (PROMIS) QUESTIONNAIRES FOR CHILDREN WITH CHRONIC NONBACTERIAL OSTEOMYELITIS USING THE CHOIR DATA

验证患有慢性非细菌性骨髓炎的儿童患者报告结局测量信息系统(PROMIS)问卷,采用CHOIR数据。

2024-06-010
PRE
Investigating the Influence of Patient Eligibility Characteristics on the Number of Deferrable Rheumatologist Visits: Planning for a Patient-Initiated Follow-Up Strategy
2024-02-012
OA
Renal Response Outcomes of the EuroLupus and National Institutes of Health Cyclophosphamide Dosing Regimens in Childhood-Onset Proliferative Lupus Nephritis
2024-01-113
OAAI
Feasibility of Conducting Comparative Effectiveness Research and Validation of a Clinical Disease Activity Score for Chronic Nonbacterial Osteomyelitis
2023-07-016
OA
Developing a Framework of Cost Elements of Socioeconomic Burden of Rare Disease: A Scoping Review

开发罕见病社会经济负担成本要素框架:一项范围综述

2023-04-070
PRE
Management of Orofacial Manifestations of Juvenile Idiopathic Arthritis: Interdisciplinary Consensus-Based Recommendations
2022-11-2526
OAAI