Elisabeth Oehrlein - Publications, H-index & Citations

Elisabeth Oehrlein

BioMarin Pharmaceutical Inc.

13H指数

75论文数

911被引数

收录论文 39

发表时间

Living With Hypochondroplasia: A Qualitative Exploration of Children's and Caregivers' Experiences, Challenges, and Unmet Needs 与软骨发育不良共处：对儿童及其照护者经历、挑战和未满足需求的质性探索

MOLECULAR GENETICS & GENOMIC MEDICINE

IF1.6

2025-11-14

OAAI

Oehrlein, Elisabeth M.; Pekala, Reni; Cavallaro, Stacie; Cho, Margaret; Crews, Chandler; Dauber, Andrew; Saxena, Ankita; Vandigo, Joe; Reese, Emily S.

Plain language summaries supporting patient involvement: lessons and guidance from HTAi Patient and Citizen Involvement Interest Group (PCIG)通俗易懂的语言摘要支持患者参与：HTAi患者和公民参与兴趣小组（PCIG）的经验与指导

International Journal of Technology Assessment in Health Care

IF3.1

2025-07-29

PREAI

Coombes, Martin Andrew; Morgan, Kate; Diaz, Jose; Oehrlein, Elisabeth M.; Andersen, Hayley; Gilardino, Ramiro; Helme, Kawitha; Pearce, Fiona; Cardone, Antonella

Achieving Patient-Centered V/HTA: Recommendations from a Multi-Stakeholder eDelphi Panel 实现以患者为中心的V/HTA：多利益相关方电子德尔菲小组的建议

Value in Health

IF6

2025-07-07

OAAI

Julia F. Slejko; Tara A. Lavelle; Joe Vandigo; Omar A. Escontrías; Silke C. Schoch; Elisabeth M. Oehrlein

Effectively Communicating the Seriousness of High Cholesterol at Diagnosis to Improve Shared Decision-Making and Adherence: Findings from the Patient-Led Insights from Patients Living with Elevated Cholesterol (IPEC) Study 有效沟通高胆固醇诊断时的严重性以改善共同决策和依从性：来自患者主导的来自患有高胆固醇患者的生活见解（IPEC）研究的结果

CIRCULATION

IF38.6

2024-11-12

PREAI

Johnson, Neil; Vandigo, Joe; De Carvalho, Fernanda; Gorre, Celina; Hall, Tanya; Hennessy, Susan; Kazi, Dhruv; Kotseva, Kornelia; Petrie, Patsy; Kelly, David; Oehrlein, Elisabeth

Measuring and Demonstrating the Value of Patient Engagement Across the Medicines Lifecycle: A Patient Engagement Impact Measurement Framework

PATIENT-PATIENT CENTERED OUTCOMES RESEARCH

IF3.1

2024-09-16

OAAI

Klein, Beyza; Perfetto, Eleanor M.; Oehrlein, Elisabeth M.; Weston, Fay; Lobban, Trudie C. A.; Boutin, Marc

Development and Testing of a Chronic-Disease Patient Experience Mapping Toolbox

PATIENT-PATIENT CENTERED OUTCOMES RESEARCH

IF3.1

2024-01-03

OAAI

Oehrlein, Elisabeth M.; Schoch, Silke; Majercak, Kelsie; Gressler, Laura Elisabeth; Costantino, Ryan C.; Love, T. Rosie; Perfetto, Eleanor M.

An Interview With the Food and Drug Administration About Draft Patient-Focused Drug Development Guidance 3: Selecting, Developing, or Modifying Fit-for-Purpose Clinical Outcome Assessments

VALUE IN HEALTH

IF6

2023-06-01

OAAI

Oehrlein, Elisabeth M.

A Foundation for Patient-Centered Core Impact Sets: Key Learnings from Past and Existing Approaches

PATIENT-PATIENT CENTERED OUTCOMES RESEARCH

IF3.1

2023-05-19

PREAI

Perfetto, Eleanor M.; Love, T. Rosie; Oehrlein, Elisabeth M.; Schoch, Silke C.; Schrandt, Suz

Enhancing Patient Centricity of Real-World Data Research: An Exploratory Analysis Using the Patient Experience Mapping Toolbox

VALUE IN HEALTH

IF6

2023-01-01

OAAI

Oehrlein, Elisabeth M.; Burcu, Mehmet; Schoch, Silke; Gressler, Laura Elisabeth

Developing Patient-Centered Real-World Evidence: Emerging Methods Recommendations From a Consensus Process 开发以患者为中心的真实世界证据: 来自共识过程的新兴方法建议

VALUE IN HEALTH

IF6

2023-01-01

OAAI

Oehrlein, Elisabeth M.; Schoch, Silke; Burcu, Mehmet; McBeth, Julia F.; Bright, Jennifer; Pashos, Chris L.; Willke, Richard; Love, T. Rosie; Mattingly II, T. Joseph; Perfetto, Eleanor M.; Patient Ctr Real World Evidence Working Grp

Patient-Centered Core Impact Sets: What They are and Why We Need Them

PATIENT-PATIENT CENTERED OUTCOMES RESEARCH

IF3.1

2022-06-02

OAAI

Perfetto, Eleanor M.; Oehrlein, Elisabeth M.; Love, T. Rosie; Schoch, Silke; Kennedy, Annie; Bright, Jennifer

The national economic burden of rare disease in the United States in 2019 美国2019年罕见病的国家经济负担

ORPHANET JOURNAL OF RARE DISEASES

IF3.5

2022-04-12

OAAI

Yang, Grace; Cintina, Inna; Pariser, Anne; Oehrlein, Elisabeth; Sullivan, Jamie; Kennedy, Annie

Engaging Patients in Real-World Evidence: An Atrial Fibrillation Patient Advisory Board Case Example

PATIENT-PATIENT CENTERED OUTCOMES RESEARCH

IF3.1

2020-12-23

OAAI

Oehrlein, Elisabeth M.; Luo, Xuemei; Savone, Mirko; Lobban, Trudie; Kang, Amiee; Lee, Brian; Gale, Rex; Schoch, Silke; Perfetto, Eleanor

Improving Access and Quality of Health Care in the United States: Shared Goals Among Patient Advocates

PATIENT-PATIENT CENTERED OUTCOMES RESEARCH

IF3.1

2020-10-21

OAAI

Oehrlein, Elisabeth M.; Harris, Jason; Balch, Alan; Furlong, Pat; Hargis, Eric; Woolley, Mary; Perfetto, Eleanor

Health Preference Research in Europe: A Review of Its Use in Marketing Authorization, Reimbursement, and Pricing Decisions-Report of the ISPOR Stated Preference Research Special Interest Group 欧洲的健康偏好研究: 对其在营销授权，报销和定价决策中的使用的回顾-ISPOR陈述偏好研究特别兴趣小组的报告

VALUE IN HEALTH

IF6

2020-07-01

OAAI

Marsh, Kevin; van Til, Janine A.; Molsen-David, Elizabeth; Juhnke, Christine; Hawken, Natalia; Oehrlein, Elisabeth M.; Choi, Y. Christy; Duenas, Alejandra; Greiner, Wolfgang; Haas, Kara; Hiligsmann, Mickael; Hockley, Kimberley S.; Ivlev, Ilya; Liu, Frank; Ostermann, Jan; Poder, Thomas; Poon, Jiat L.; Muehlbacher, Axel

De fining Patient Engagement in Research: Results of a Systematic Review and Analysis: Report of the ISPOR Patient -Centered Special Interest Group

VALUE IN HEALTH

IF6

2020-06-01

OAAI

Harrington, Rachel L.; Hanna, Maya L.; Oehrlein, Elisabeth M.; Camp, Rob; Wheeler, Russell; Cooblall, Clarissa; Tesoro, Theresa; Scott, Amie M.; von Gizycki, Rainald; Nguyen, Francis; Hareendran, Asha; Patrick, Donald L.; Perfetto, Eleanor M.

DEVELOPMENT OF A PATIENT-FRIENDLY TRAINING ON HEALTH ECONOMICS AND VALUE ASSESSMENT

VALUE IN HEALTH

IF6

2019-05-01

OAAI

Harris, J.; Mattingly, J.; Oehrlein, E.; Perfetto, E. M.; Boutin, M.

Patient-Community Perspectives on Real-World Evidence: Enhancing Engagement, Understanding, and Trust

PATIENT-PATIENT CENTERED OUTCOMES RESEARCH

IF3.1

2019-01-22

OAAI

Oehrlein, Elisabeth M.; Graff, Jennifer S.; Harris, Jason; Perfetto, Eleanor M.