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Healthcare priorities and needs for LGBTQIA+ people with cystic fibrosis: A concept mapping study

delete2026-06-29
delete0
PRE
AI
K
Kacie M. Kidd *
R
Rachel Salyer
S
Sydney J Rashid
A
Abigail S Mitchell
A
Adrianne Alpern
J
Jonathan Greenberg
O
Olivia M Stransky
A
Asher Prangley
V
Vin Tangpricha
G
Gina M. Sequeira
M
Mitchell R. Lunn
J
John Palla
L
Leo Cevallos
R
Raksha Jain
S
Stephen E. Deci
N
Nicole Kahn
A
Alexandra “Xan” C.H. Nowakowski
A
Abraham I. Sender
G
Gregory S Sawicki
T
Traci M. Kazmerski
DOI:10.1016/j.jcf.2026.06.006delete
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Abstract

Abstract

En 中文
• LGBTQIA+ people with cystic fibrosis (CF) expressed varied health needs and priorities. • Despite this diversity, there were high levels of agreement on the need for training and improving respectful interactions in healthcare settings, representation of other LGBTQIA+ people in CF-related settings, and additional research related to the health impacts of gender affirming care. • Concept mapping (CM) recognizes that the participant is the knowledge holder, and we sought to elevate participant feedback and insights throughout this process.

Journal

Journal of Cystic Fibrosis cover
Journal of Cystic Fibrosis
IF:
6
Papers:
2.9K
Citations:
7.3K

Organization

W
West Virginia University School of Medicine
Scholars:
13
Papers: 5
Citations: 0
U
university of texas southwestern
Scholars:
418
Papers: 199
Citations: 0
F
florida state university
Scholars:
1.0K
Papers: 532
Citations: 0
U
university of washington
Scholars:
7.8K
Papers: 3.7K
Citations: 2
C
Children's Hospital of Orange County
Scholars:
601
Papers: 411
Citations: 539
U
University of Vermont Medical Center
Scholars:
35
Papers: 27
Citations: 0
E
emory university
Scholars:
3.6K
Papers: 1.4K
Citations: 0
S
stanford university school of medicine
Scholars:
588
Papers: 183
Citations: 0
B
Boston Children's Hospital
Scholars:
1.3K
Papers: 646
Citations: 3.3W
U
university of pittsburgh
Scholars:
5.1K
Papers: 2.3K
Citations: 1
N
Northwestern University
Scholars:
6.1W
Papers: 5.2W
Citations: 3.9K
Cited Papers

Cited Papers

Citing Papers

Citing Papers