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the patient - patient-centered outcomes research

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Papers43
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Journal Papers 55
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Co-Creation of the EpiCom Clinical Trial: Bringing the Tuberous Sclerosis Complex Patient Community, Healthcare Professionals, and the Pharmaceutical Industry Together
delete2026-07-11
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deleteLisa Moore-Ramdin; Agnies van Eeghen; Joanne Stevens; Pooja Takhar; Shelly Meitzler; Carla Fladrowski; Micaela Rozenberg; Sam Amin
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Experiences of People with Type 2 Diabetes and Healthcare Professionals with Once-Weekly Insulin Efsitora Alfa in QWINT Phase 3 Trials: Qualitative In-Trial Interviews
delete2026-06-29
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deleteWilliam H. Polonsky; Emma L. Low; Carla Dias-Barbosa; Amy Clark; Karen Bailey; Liza Ilag; Livia Firmino Gonçalves; Rebecca Threlkeld; Christopher J. Child; Michael B. Davidson; Eden Miller; Felicia T. Gelsey
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Expanding Access to Oral Contraceptive Pills: Do Consumers Prefer Over-the-Counter Availability?
delete2026-06-15
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deleteZobaida Ahmed; Bonny Parkinson; Kompal Sinha; Mutsa Mutowo; Yuanyuan Gu
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Patient Preferences and Treatment Decision Drivers in IDH-Mutant Grade 2 Glioma: An International Discrete Choice Experiment
delete2026-06-13
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deleteAshley Parham Ghiaseddin; Kismet Hossain-Ibrahim; Antje Wick; Céline Aubin; Marc Massetti; Anaïs Ragon; Fatemeh Amini; Alasdair Fellows; Daniel Aggio
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Responsiveness of the EQ-5D-Y-5L Parent-Proxy Version Among Children with Juvenile Idiopathic Arthritis
delete2026-06-09
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deleteDeborah A. Marshall; Jiabi Wen; Gillian R. Currie; Susanne M. Benseler; Joost F. Swart; Sebastiaan J. Vastert; Rae S. M. Yeung; Arto Ohinmaa
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Severity or Incidence: Labeling Side-Effect Attributes in Discrete Choice Experiments
delete2026-04-28
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deleteStella Maria Marceta; Esther Wilhelmina de Bekker-Grob; Tom Van Ourti; Jorien Veldwijk
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Patients’ Preferences for Surgical Procedures in Hidradenitis Suppurativa: A Discrete Choice Experiment
delete2026-04-24
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deleteKatja C. Heinz; Emily G. Summers; Charlotte Beaudart; Teja Mallela; Stephanie Goldberg; Melonie Brown; Keven M. Brown; Christopher John Sayed; Mickael Hiligsmann
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Correction: Public Preferences and Willingness to Pay for a Multidisciplinary Colorectal and Pelvic Reconstruction Service
delete2026-04-22
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PREAI
deleteTianxin Pan; Misel Trajanovska; Yan Meng; Stephanie Best; Sebastian K. King; Ilias Goranitis
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Experiences of Migraine and Erenumab Treatment in Japan: Qualitative Interviews with Clinical Trial Participants
delete2026-04-16
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deleteCarla Dias-Barbosa; Hisaka Igarashi; Ashley Duenas; Asha Hareendran; Shigekazu Kitamura; Shigeya Tanaka; Naoko Sanno; Hikaru Doi; Tsutomu Nagamitsu; Yoshihisa Tatsuoka; Yasuhiko Matsumori; Miki Hasebe; Takao Takeshima
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Putting Patient Voices at the Heart of Healthcare Decisions: The UNIFIED Public-Private Project
delete2026-04-02
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deleteEsther W. de Bekker-Grob; Jorien Veldwijk; Bianca Pop; Josh Coulter; Brett Hauber
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Stated Preferences for Systemic Treatments for Prostate Cancer: A Targeted Review of the Discrete-Choice Experiment Literature
delete2026-03-12
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deleteNeeraj Agarwal; Brett Hauber; Agnes Hong; Joshua Coulter; David Russell; Michael Ryan; Savanna Darnell; Verity Watson; Sean P. Collins
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Incorporating the Patient Voice into Attribute and Level Selection for a Preference Study: A Qualitative Study in Non-Muscle Invasive Bladder Cancer
delete2026-03-11
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deleteBrad Mason; Anthony Eccleston; Lara Ayala-Nunes; Brett Hauber; Adam Gater; Joshua Coulter; Pam Hallworth; Allison Thompson; Bethany Bell; Jane Chang; Julia Brinkmann; Joseph C. Cappelleri; Stephanie Chisolm; Raj Satkunasivam
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Patients’ Experiences of Obstructive Sleep Apnea and Tirzepatide Treatment: An Exit Interview Study
delete2026-03-07
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deleteShraddha Shinde; Chisom Kanu; Oralee J. Varnado; Jo Bednarik; Ellen B. Dennehy; Carla Dias-Barbosa; Natalie Taylor
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Understanding Patient Preferences for Medication Process Attributes: A Systematic Literature Review
delete2026-03-04
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deleteJessica Roydhouse; Glen J. Henson; Nizam Abdu; Thi Thu Ngan Dinh; Thi Ly Tran; Brendan Mulhern; Julie A. Campbell
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