Not logged in DEMOGRAPHIC, CLINICAL AND IMAGING CHARACTERISTICS OF NEWLY DIAGNOSED OPTIC PATHWAY GLIOMAS ASSOCIATED WITH NF1: RESULTS FROM THE INTERNATIONAL MULTICENTER NF1-OPG NATURAL HISTORY STUDY Fisher, Michael J.; de Blank, Peter; Listernick, Robert; Liu, Grant; Ferner, Rosalie; Gutmann, David; Lasky-Zeid, Janice; Ullrich, Nicole; Heidary, Gena; Bornhorst, Miriam; Stasheff, Steven; Rosser, Teena; Borcher, March; Arden-Holmes, Simone; Flaherty, Maree; Hummel, Trent; Motley, Walker; Bielamowicz, Kevin; Phillips, Paul; Bouffet, Eric; Reginald, Arun; Wolf, David; Peragallo, Jason; El-Dairi, Mays; Van Mater, David; Sato, Aimee; Tarczy-Hornoch, Kristina; Klesse, Laura; Hogan, Nick; Foreman, Nicholas; Mccourt, Emily; Allen, Jeffrey; Ranka, Milan; Campen, Cynthia; Beres, Shannon; Moertel, Christopher; Areaux, Ray; Stearns, Duncan; Orge, Faruk; Crawford, John; O'Halloran, Henry; Oattes, Julius; Reddy, Alyssa; Brodsky, Michael; Esbenshade, Adam; Donahue, Sean; Cutter, Gary; Avery, Robert Share Save
TUMOR VOLUME IN NEWLY DIAGNOSED OPTIC PATHWAY GLIOMAS ASSOCIATED WITH NF1 (NF1-OPG): PRELIMINARY RESULTS FROM THE INTERNATIONAL MULTICENTER NF1-OPG NATURAL HISTORY STUDY Avery, Robert; Jiang, Zhifan; Parida, Abhijeet; Listernick, Robert; Liu, Grant; Ferner, Rosalie; Gutmann, David; de Blank, Peter; Lasky-Zeid, Janice; Ullrich, Nicole; Heidary, Gena; Bornhorst, Miriam; Stasheff, Steven; Rosser, Teena; Borchert, Mark; Arden-Holmes, Simone; Flaherty, Maree; Hummel, Trent; Motley, Walker; Bielamowicz, Kevin; Phillips, Paul; Bouffet, Eric; Reginald, Arun; Wolf, David; Peragallo, Jason; Van Mater, David; El-Diari, Mays; Sato, Aimee; Tarczy-Hornoch, Kristina; Klesse, Laura; Hogan, Nick; Foreman, Nicholas; Mccourt, Emily; Allen, Jeffrey; Ranka, Milan; Campen, Cynthia; Beres, Shannon; Moertel, Christopher; Areaux, Ray; Stearns, Duncan; Orge, Faruk; Crawford, John; O'Halloran, Henry; Brodsky, Michael; Esbenshade, Adam; Donahue, Sean; Oattes, Julius; Reddy, Alyssa; Cutter, Gary; Linguraru, Marius; Fisher, Michael Share Save
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ERN GENTURIS tumour surveillance guidelines for individuals with neurofibromatosis type 1 Carton, Charlotte; Evans, D. Gareth; Blanco, Ignacio; Friedrich, Reinhard E.; Ferner, Rosalie E.; Farschtschi, Said; Salvador, Hector; Azizi, Amedeo A.; Mautner, Victor; Roehl, Claas; Peltonen, Sirkku; Stivaros, Stavros; Legius, Eric; Oostenbrink, Rianne Share Save
Updated diagnostic criteria and nomenclature for neurofibromatosis type 2 and schwannomatosis: An international consensus recommendation Plotkin, Scott R.; Messiaen, Ludwine; Legius, Eric; Pancza, Patrice; Avery, Robert A.; Blakeley, Jaishri O.; Babovic-Vuksanovic, Dusica; Ferner, Rosalie; Fisher, Michael J.; Friedman, Jan M.; Giovannini, Marco; Gutmann, David H.; Hanemann, Clemens Oliver; Kalamarides, Michel; Kehrer-Sawatzki, Hildegard; Korf, Bruce R.; Mautner, Victor-Felix; MacCollin, Mia; Papi, Laura; Rauen, Katherine A.; Riccardi, Vincent; Schorry, Elizabeth; Smith, Miriam J.; Stemmer-Rachamimov, Anat; Stevenson, David A.; Ullrich, Nicole J.; Viskochil, David; Wimmer, Katharina; Yohay, Kaleb; Huson, Susan M.; Wolkenstein, Pierre; Evans, D. Gareth Share Save
Management of neurofibromatosis type 1-associated plexiform neurofibromas Fisher, Michael J.; Blakeley, Jaishri O.; Weiss, Brian D.; Dombi, Eva; Ahlawat, Shivani; Akshintala, Srivandana; Belzberg, Allan J.; Bornhorst, Miriam; Bredella, Miriam A.; Cai, Wenli; Ferner, Rosalie E.; Gross, Andrea M.; Harris, Gordon J.; Listernick, Robert; Ly, Ina; Martin, Staci; Mautner, Victor F.; Salamon, Johannes M.; Salerno, Kilian E.; Spinner, Robert J.; Staedtke, Verena; Ullrich, Nicole J.; Upadhyaya, Meena; Wolters, Pamela L.; Yohay, Kaleb; Widemann, Brigitte C. Share Save
ERN GENTURIS clinical practice guidelines for the diagnosis, treatment, management and surveillance of people with schwannomatosis Evans, D. Gareth; Mostaccioli, Stefania; Pang, David; Connor, Mary Fadzil O.; Pittara, Melpo; Champollion, Nicolas; Wolkenstein, Pierre; Thomas, Nick; Ferner, Rosalie E.; Kalamarides, Michel; Peyre, Matthieu; Papi, Laura; Legius, Eric; Becerra, Juan Luis; King, Andrew; Duff, Chris; Stivaros, Stavros; Blanco, Ignacio Share Save
Revised diagnostic criteria for neurofibromatosis type 1 and Legius syndrome: an international consensus recommendation Legius, Eric; Messiaen, Ludwine; Wolkenstein, Pierre; Pancza, Patrice; Avery, Robert A.; Berman, Yemima; Blakeley, Jaishri; Babovic-Vuksanovic, Dusica; Cunha, Karin Soares; Ferner, Rosalie; Fisher, Michael J.; Friedman, Jan M.; Gutmann, David H.; Kehrer-Sawatzki, Hildegard; Korf, Bruce R.; Mautner, Victor-Felix; Peltonen, Sirkku; Rauen, Katherine A.; Riccardi, Vincent; Schorry, Elizabeth; Stemmer-Rachamimov, Anat; Stevenson, David A.; Tadini, Gianluca; Ullrich, Nicole J.; Viskochil, David; Wimmer, Katharina; Yohay, Kaleb; Huson, Susan M.; Evans, D. Gareth; Plotkin, Scott R. Share Save
Identifying challenges in neurofibromatosis: a modified Delphi procedure Dhaenens, Britt A. E.; Ferner, Rosalie E.; Bakker, Annette; Nievo, Marco; Evans, D. Gareth; Wolkenstein, Pierre; Potratz, Cornelia; Plotkin, Scott R.; Heimann, Guenter; Legius, Eric; Oostenbrink, Rianne Share Save
NF1 optic pathway glioma: analyzing risk factors for visual outcome and indications to treat Azizi, Amedeo A.; Walker, David A.; Liu, Jo-Fen; Sehested, Astrid; Jaspan, Timothy; Pemp, Berthold; Simmons, Ian; Ferner, Rosalie; Grill, Jacques; Hargrave, Darren; Driever, Pablo Hernaiz; Evans, D. Gareth; Opocher, Enrico Share Save
Identifying the deficiencies of current diagnostic criteria for neurofibromatosis 2 using databases of 2777 individuals with molecular testing Evans, D. Gareth; King, Andrew T.; Bowers, Naomi L.; Tobi, Simon; Wallace, Andrew J.; Perry, Mary; Anup, Raji; Lloyd, Simon K. L.; Rutherford, Scott A.; Hammerbeck-Ward, Charlotte; Pathmanaban, Omar N.; Stapleton, Emma; Freeman, Simon R.; Kellett, Mark; Halliday, Dorothy; Parry, Allyson; Gair, Juliette J.; Axon, Patrick; Laitt, Roger; Thomas, Owen; Afridi, Shazia; Ferner, Rosalie E.; Harkness, Elaine F.; Smith, Miriam J.; Tysome, James; Donnelly, Neil; Raymond, Lucy; Hensiek, Anke; Jena, Rajesh; Macfarlane, Robert; Mannion, Richard; Nicholson, James; Muthusamy, Brinda; Taylor, Amy; Price, Richard; Rands, Gabriella; Gamazo, Nicola; Scoffings, Zebunnisa Daniel; Jefferies, Sarah; Knight, Richard; Vanat, Tamara Lamb; Tam, Yu Chuen; Foweraker, Karen; Harris, Fiona; Heney, David; Sanghera, Paul; Irving, Richard; Monksfield, Peter; Sharif, Saba; Ragge, Nicola; Smyth, Carolyn; Barwell, Julian; English, Martin; Obholzer, Rupert; Williams, Victoria; Hammond, Chris; Lascelles, Karine; Skilbeck, Chris; Saeed, Shakeel; Shaw, Adam; Swampillai, Angela; Thomson, Suki; Thomas, Nick; Maratos, Eleni; Barazi, Sinan; Mullin, Rebecca; Henley, Susie; Trump, Sally; Everett, Vanessa; Nunn, Terry; Nduka, Charles; Duff, Chris; Jarvis, Nicola; Kamaly-Asl, Ian; Kilday, John-Paul; Malluci, Connor; Mawman, Deborah; McBain, Catherine; O'Driscoll, Martin; McCabe, Martin; Perry, Mary; Rutherford, Scott; Henshaw, Kirsty; Stivaros, Stavros; Vassallo, Grace; Hammerbeck-Ward, Charlotte; Kurian, Jincy; Blesing, Claire; Browne, Kate; Crabtree, Rosie; Cogswell, Lucy; Dalton, Louise; Dodridge, Caroline; Emmanouil, Beatrice; Giele, Henk; Hanemann, C. Oliver; Howard, Wendy; Jeyaretna, Sanjeeva; Kerr, Richard; Mace, Elle; MacKeith, Sam; May, Anne; Pretorius, Peter; Ramsden, James; Redman, Carolyn; Taylor, Srilakshmi Sharma Ros; Tomkins, Helen; Wilson, Shaun; Woolrich, Rachael Share Save
Schwannomatosis: a genetic and epidemiological study Evans, D. Gareth; Bowers, Naomi L.; Tobi, Simon; Hartley, Claire; Wallace, Andrew J.; King, Andrew T.; Lloyd, Simon K. W.; Rutherford, Scott A.; Hammerbeck-Ward, Charlotte; Pathmanaban, Omar N.; Freeman, Simon R.; Ealing, John; Kellett, Mark; Laitt, Roger; Thomas, Owen; Halliday, Dorothy; Ferner, Rosalie; Taylor, Amy; Duff, Chris; Harkness, Elaine F.; Smith, Miriam J. Share Save
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The characteristics of 76 atypical neurofibromas as precursors to neurofibromatosis 1 associated malignant peripheral nerve sheath tumors Higham, Christine S.; Dombi, Eva; Rogiers, Aljosja; Bhaumik, Sucharita; Pans, Steven; Connor, Steve E. J.; Miettinen, Markku; Sciot, Raf; Tirabosco, Roberto; Brems, Hilde; Baldwin, Andrea; Legius, Eric; Widemann, Brigitte C.; Ferner, Rosalie E. Share Save
Neurofibromatosis Type 1-Associated MPNST State of the Science: Outlining a Research Agenda for the Future Reilly, Karlyne M.; Kim, AeRang; Blakely, Jaishri; Ferner, Rosalie E.; Gutmann, David H.; Legius, Eric; Miettinen, Markku M.; Randall, R. Lor; Ratner, Nancy; Jumbe, N. L.; Bakker, Annette; Viskochil, David; Widemann, Brigitte C.; Stewart, Douglas R. Share Save
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