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Integrating the Patient Perspective into Healthcare and Real-World Evidence: The Multi-site, Cross-Disease, Patient-Centered Outcomes Research Project in the Medical Informatics Initiative (PCOR-MII) 将患者观点整合到医疗保健和现实世界的证据中: 医学信息学计划 (PCOR-MII) 中的多站点，跨疾病，以患者为中心的结果研究项目 Rogge, A. A.; Mukowski-Kickhofel, R.; Boeker, M.; Budde, K.; Debertshauser, T.; Dugas, M.; Erim, Y.; Friederich, H. -c.; Ganslandt, T.; Giel, K.; Henningsen, P.; Herrmann, T.; Heuschmann, P. U.; Junne, F.; Kohlbacher, O.; Kribben, A.; Lowe, B.; Marschollek, M.; Nensa, F.; Oeltze-Jafra, S.; Pape, L.; Pryss, R.; Schiffer, M.; Schmidt-Ott, K.; Storck, M.; Suwelack, B.; Thun, S.; Ueckert, F.; Varghese, J.; Zeier, M.; Zipfel, S.; de Zwaan, M.; Rose, M.; Prasser, F. 分享 收藏
A corpus of GA4GH phenopackets: Case-level phenotyping for genomic diagnostics and discovery Danis, Daniel; Bamshad, Michael J.; Bridges, Yasemin; Caballero-Oteyza, Andres; Cacheiro, Pilar; Carmody, Leigh C.; Chimirri, Leonardo; Chong, Jessica X.; Coleman, Ben; Dalgleish, Raymond; Freeman, Peter J.; Graefe, Adam S. L.; Groza, Tudor; Hansen, Peter; Jacobsen, Julius O. B.; Klocperk, Adam; Kusters, Maaike; Ladewig, Markus S.; Marcello, Allison J.; Mattina, Teresa; Mungall, Christopher J.; Munoz-Torres, Monica C.; Reese, Justin T.; Rehburg, Filip; Reis, Barbara C. S.; Schuetz, Catharina; Smedley, Damian; Strauss, Timmy; Sundaramurthi, Jagadish Chandrabose; Thun, Sylvia; Wissink, Kyran; Wagstaff, John F.; Zocche, David; Haendel, Melissa A.; Robinson, Peter N. 分享 收藏
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Interoperable, Domain-Specific Extensions for the German Corona Consensus (GECCO) COVID-19 Research Data Set Using an Interdisciplinary, Consensus-Based Workflow: Data Set Development Study 使用跨学科，基于共识的工作流为德国电晕共识 (GECCO) 新型冠状病毒肺炎研究数据集提供可互操作的特定领域扩展: 数据集开发研究 Lichtner, Gregor; Haese, Thomas; Brose, Sally; Roehrig, Larissa; Lysya-kova, Liudmila; Rudolph, Stefanie; Uebe, Maria; Sass, Julian; Bartschke, Alexander; Hillus, David; Kurth, Florian; Sander, Leif Erik; Eckart, Falk; Toepfner, Nicole; Berner, Reinhard; Frey, Anna; Doerr, Marcus; Vehreschild, Joerg Janne; von Kalle, Christof; Thun, Sylvia 分享 收藏
Analysis of acute COVID-19 including chronic morbidity: protocol for the deep phenotyping National Pandemic Cohort Network in Germany (NAPKON-HAP) 包括慢性发病在内的急性新型冠状病毒肺炎分析: 德国深度表型全国大流行队列网络方案 (NAPKON-HAP) Steinbeis, Fridolin; Thibeault, Charlotte; Steinbrecher, Sarah; Ahlgrimm, Yvonne; Haack, Ira An; August, Dietrich; Balzuweit, Beate; Bellinghausen, Carla; Berger, Sarah; Chaplinskaya-Sobol, Irina; Cornely, Oliver; Doeblin, Patrick; Endres, Matthias; Fink, Claudia; Finke, Carsten; Frank, Sandra; Hanss, Sabine; Hartung, Tim; Hellmuth, Johannes Christian; Herold, Susanne; Heuschmann, Peter; Heyckendorf, Jan; Heyder, Ralf; Hippenstiel, Stefan; Hoffmann, Wolfgang; Kelle, Sebastian Ulrich; Knape, Philipp; Koehler, Philipp; Kretzler, Lucie; Leistner, David Manuel; Lienau, Jasmin; Lorbeer, Roberto; Lorenz-Depiereux, Bettina; Luettke, Constanze Dorothea; Mai, Knut; Merle, Uta; Meyer-Arndt, Lil Antonia; Miljukov, Olga; Muenchhoff, Maximilian; Mueller-Plathe, Moritz; Neuhann, Julia; Neuhauser, Hannelore; Nieters, Alexandra; Otte, Christian; Pape, Daniel; Pinto, Rafaela Maria; Pley, Christina; Pudszuhn, Annett; Reuken, Philipp; Rieg, Siegberg; Ritter, Petra; Rohde, Gernot; Roennefarth, Maria; Ruzicka, Michael; Schaller, Jens; Schmidt, Anne; Schmidt, Sein; Schwachmeyer, Verena; Schwanitz, Georg; Seeger, Werner; Stahl, Dana; Stobaeus, Nicole; Stubbe, Hans Christian; Suttorp, Norbert; Temmesfeld, Bettina; Thun, Sylvia; Triller, Paul; Trinkmann, Frederik; Vadasz, Istvan; Valentin, Heike; Vehreschild, Maria; von Kalle, Christof; von Lilienfeld-Toal, Marie; Weber, Joachim; Welte, Tobias; Wildberg, Christian; Wizimirski, Robert; Zvork, Saskia; Sander, Leif Erik; Vehreschild, Janne; Zoller, Thomas; Kurth, Florian; Witzenrath, Martin 分享 收藏
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Secondary data for global health digitalisation Naeher, Anatol-Fiete; Vorisek, Carina N.; Klopfenstein, Sophie A., I; Lehne, Moritz; Thun, Sylvia; Alsalamah, Shada; Pujari, Sameer; Heider, Dominik; Ahrens, Wolfgang; Pigeot, Iris; Marckmann, Georg; Jenny, Mirjam A.; Renard, Bernhard Y.; von Kleist, Max; Wieler, Lothar H.; Balzer, Felix; Grabenhenrich, Linus 分享 收藏
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The GA4GH Phenopacket schema defines a computable representation of clinical data Jacobsen, Julius O. B.; Baudis, Michael; Baynam, Gareth S.; Beckmann, Jacques S.; Beltran, Sergi; Buske, Orion J.; Callahan, Tiffany J.; Chute, Christopher G.; Courtot, Melanie; Danis, Daniel; Elemento, Olivier; Essenwanger, Andrea; Freimuth, Robert R.; Gargano, Michael A.; Groza, Tudor; Hamosh, Ada; Harris, Nomi L.; Kaliyaperumal, Rajaram; Lloyd, Kevin C. Kent; Khalifa, Aly; Krawitz, Peter M.; Koeler, Sebastian; Laraway, Brian J.; Lehvaslaiho, Heikki; Matalonga, Leslie; McMurry, Julie A.; Metke-Jimenez, Alejandro; Mungall, Christopher J.; Munoz-Torres, Monica C.; Ogishima, Soichi; Papakonstantinou, Anastasios; Piscia, Davide; Pontikos, Nikolas; Queralt-Rosinach, Nuria; Roos, Marco; Sass, Julian; Schofield, Paul N.; Seelow, Dominik; Siapos, Anastasios; Smedley, Damian; Smith, Lindsay D.; Steinhaus, Robin; Sundaramurthi, Jagadish Chandrabose; Swietlik, Emilia M.; Thun, Sylvia; Vasilevsky, Nicole A.; Wagner, Alex H.; Warner, Jeremy L.; Weiland, Claus; Haendel, Melissa A.; Robinson, Peter N. 分享 收藏
Harmonization and standardization of data for a pan-European cohort on SARS- CoV-2 pandemic Rinaldi, Eugenia; Stellmach, Caroline; Rajkumar, Naveen Moses Raj; Caroccia, Natascia; Dellacasa, Chiara; Giannella, Maddalena; Guedes, Mariana; Mirandola, Massimo; Scipione, Gabriella; Tacconelli, Evelina; Thun, Sylvia 分享 收藏
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Interdisciplinary Online Hackathons as an Approach to Combat the COVID-19 Pandemic: Case Study Braune, Katarina; Rojas, Pablo-David; Hofferbert, Joscha; Sosa, Alvaro Valera; Lebedev, Anastasiya; Balzer, Felix; Thun, Sylvia; Lieber, Sascha; Kirchberger, Valerie; Poncette, Akira-Sebastian 分享 收藏
The German Corona Consensus Dataset (GECCO): a standardized dataset for COVID-19 research in university medicine and beyond 德国电晕共识数据集 (GECCO): 大学医学及其他领域新型冠状病毒肺炎研究的标准化数据集 Sass, Julian; Bartschke, Alexander; Lehne, Moritz; Essenwanger, Andrea; Rinaldi, Eugenia; Rudolph, Stefanie; Heitmann, Kai U.; Vehreschild, Joerg J.; von Kalle, Christof; Thun, Sylvia 分享 收藏
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