未登录 Integrating evidence, subject-matter expertise, and consensus in Delphi-based clinical guideline development 整合证据、专业知识和共识在基于德尔菲法的临床指南开发中的应用 Mathai, David S.; Cluck, Madeleine; Aslam, Amna M.; Amato, Erin; Azam, Arsalan; Banov, Michael; Barrett, Kathleen A.; Bonnett, Carl J.; Feifel, David; Grundmann, Nicolas; Ko, H. Samuel; McShane, Rupert; Prashad, Sandhya; Santini, Tatiana; Stewart, Lowan H.; Sullivan, Patrick; Wolfsohn, Stefany D.; Robinson, Jill O.; McGuire, Amy L.; McInnes, L. Alison 分享 收藏
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Genomic sequencing in diverse and underserved pediatric populations: Parent perspectives on understanding, uncertainty, psychosocial impact, and personal utility of results 在多样化和弱势儿童人群中的基因组测序:家长对结果的理解、不确定性、心理社会影响和个人效用观点 Biesecker, Barbara B.; Ackerman, Sara L.; Brothers, Kyle B.; East, Kelly M.; Foreman, Ann Katherine M.; Hindorff, Lucia A.; Horowitz, Carol R.; Jarvik, Gail P.; Knight, Sara J.; Leo, Michael C.; Patrick, Donald L.; Rini, Christine; Robinson, Jill O.; Sahin-Hodoglugil, Nuriye Nalan; Slavotinek, Anne; Suckiel, Sabrina A.; Veenstra, David L.; Zinberg, Randi E.; Hunter, Jessica Ezzell 分享 收藏
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Investigative genetic genealogy practices warranting policy attention: Results of a modified policy Delphi Guerrini, Christi J.; Kalokairinou, Louiza; Robinson, Jill O.; Bash Brooks, Whitney; Fullerton, Stephanie M.; Huston, Sara; Dahlquist, Jacklyn; Madden, Diana; Crossnohere, Norah; Campoamor, Nicola; Bridges, John F. P.; Mcguire, Amy L. 分享 收藏
Measuring perceived utility of genomic sequencing: Development and validation of the GENEtic Utility (GENE-U) scale for adult screening Smith, Hadley Stevens; Rubanovich, Caryn Kseniya; Robinson, Jill Oliver; Levchenko, Ariel N.; Classen, Sarah A.; Malek, Janet; Buchanan, Adam H.; Biesecker, Barbara; Brothers, Kyle B.; Wilfond, Benjamin S.; Rini, Christine; Bloss, Cinnamon S.; McGuire, Amy L.; Knight, Sara J. 分享 收藏
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ARTICLE Satisfaction with mode of delivery of genomic sequencing results in a diverse national sample of research participants through the Clinical Sequencing Evidence-Generating Research Consortium Scollon, Sarah; Robinson, Jill O.; Jo, Eunji; Suckiel, Sabrina A.; Amendola, Laura M.; Foreman, Ann Katherine M.; Jarvik, Gail P.; Rini, Christine; Wang, Tao; Slavotinek, Anne 分享 收藏
Measuring perceived utility of genomic sequencing: Development and validation of the GENEtic Utility (GENE-U) scale for pediatric diagnostic testing Smith, Hadley Stevens; Rubanovich, Caryn Kseniya; Robinson, Jill Oliver; Levchenko, Ariel N.; Classen, Sarah A.; Malek, Janet; Biesecker, Barbara; Brothers, Kyle B.; Wilfond, Benjamin S.; Rini, Christine; Knight, Sara J.; McGuire, Amy L.; Bloss, Cinnamon S. 分享 收藏
Genomic sequencing research in pediatric cancer care: Decision making, attitudes, and perceived utility among adolescents and young adults and their parents Gutierrez, Amanda M.; Robinson, Jill O.; Smith, Hadley S.; Desrosiers-Battu, Lauren R.; Scollon, Sarah R.; Canfield, Isabel; Hsu, Rebecca L.; Schneider, Nicole M.; Parsons, D. Williams; Plon, Sharon E.; Allen-Rhoades, Wendy; Majumder, Mary A.; Malek, Janet; McGuire, Amy L. 分享 收藏
Research Participants' Perspectives on Precision Diagnostics for Alzheimer's Disease Smith, Hadley Stevens; Robinson, Jill O.; Levchenko, Ariel; Pereira, Stacey; Pascual, Belen; Bradbury, Kathleen; Arbones, Victoria; Fong, Jamie; Shulman, Joshua M.; McGuire, Amy L.; Masdeu, Joseph 分享 收藏
Participant perceptions of changes in psychosocial domains following participation in an adaptive deep brain stimulation trial 参与适应性深部脑刺激试验后,参与者对心理社会领域变化的看法 Merner, Amanda R.; Kostick-Quenet, Kristin; Campbell, Tiffany A.; Pham, Michelle T.; Sanchez, Clarissa E.; Torgerson, Laura; Robinson, Jill; Pereira, Stacey; Outram, Simon; Koenig, Barbara A.; Starr, Philip A.; Gunduz, Aysegul; Foote, Kelly D.; Okun, Michael S.; Goodman, Wayne; McGuire, Amy L.; Zuk, Peter; Lazaro-Munoz, Gabriel 分享 收藏
Precision Neurology for Dementia Shulman, Joshua; Vanegas-Arroyave, Nora; Fong, Jamie; Elsea, Sarah; Lin, Chi-ing; Saade, Hiba; Chavez, Fatima; Walker, Kimberly; Yuan, Bo; Venner, Eric; Hu, Jianhong; Levchenko, Ariel; Smith, Hadley; Robinson, Jill; Pascual, Belen; Muzny, Donna; Gibbs, Richard; McGuire, Amy; Masdeu, Joseph 分享 收藏
Spherical indentation of polycrystalline cubic boron nitride (PcBN): Contact damage evolution with increasing load and microstructural effects Pereira, Stacey; Gutierrez, Amanda M.; Robinson, Jill Oliver; Christensen, Kurt D.; Genetti, Casie A.; Zawatsky, Carrie L. Blout; Hsu, Rebecca L.; Zettler, Bethany; Uveges, Melissa Kurtz; Parad, Richard B.; Beggs, Alan H.; Holm, Ingrid A.; Green, Robert C.; McGuire, Amy L. 分享 收藏
Post-trial access in implanted neural device research: Device maintenance, abandonment, and cost 植入式神经设备研究中的试验后访问: 设备维护,放弃和成本 Lazaro-Munoz, Gabriel; Pham, Michelle T.; Munoz, Katrina A.; Kostick-Quenet, Kristin; Sanchez, Clarissa E.; Torgerson, Laura; Robinson, Jill; Pereira, Stacey; Outram, Simon; Koenig, Barbara A.; Starr, Philip A.; Gunduz, Aysegul; Foote, Kelly D.; Okun, Michael S.; Goodman, Wayne; McGuire, Amy L.; Zuk, Peter 分享 收藏
Lessons learned and recommendations for data coordination in collaborative research: The CSER consortium experience Muenzen, Kathleen D.; Amendola, Laura M.; Kauffman, Tia L.; Mittendorf, Kathleen F.; Bensen, Jeannette T.; Chen, Flavia; Green, Richard; Powell, Bradford C.; Kvale, Mark; Angelo, Frank; Farnan, Laura; Fullerton, Stephanie M.; Robinson, Jill O.; Li, Tianran; Murali, Priyanka; Lawlor, James M. J.; Ou, Jeffrey; Hindorff, Lucia A.; Jarvik, Gail P.; Crosslin, David R. 分享 收藏
Physician recommendations after germline sequencing in pediatric cancer patients: Texas KidsCanSeq study Plon, Sharon; Desrosiers, Lauren; Robinson, Jill; Russell, Heidi; Scollon, Sarah; Dai, Hongzheng; Raesz-Martinez, Robin; Recinos, Alva; Reuther, Jacquelyn; Naik, Medha; Miles, George; Ramamurthy, Uma; Muzny, Donna; Roy, Angshumoy; Gibbs, Richard; Tomlinson, Gail; Bernini, Juan Carlos; Gill, Jonathan; Griffin, Timothy; Vallance, Kelly; McGuire, Amy; Parsons, D. Williams 分享 收藏