Eleanor M. Perfetto - Publications, H-index & Citations

Eleanor M. Perfetto

university of maryland

21H指数

120论文数

1.9K被引数

收录论文 48

发表时间

Somewhere to go: a position paper on addressing gaps in transition care for adults with childhood-onset rare diseases 去向何处：关于解决成年期罕见病患者的过渡期护理缺口的位置论文

Orphanet Journal of Rare Diseases

IF3.5

2025-10-04

OAAI

Laura L. Tosi; Tracy S. Hart; Gabriela Beug; Erika Carter; Eleanor M. Perfetto

Cardiovascular disease in adults with osteogenesis imperfecta: clinical characteristics, care recommendations, and research priorities identified using a modified Delphi technique

JOURNAL OF BONE AND MINERAL RESEARCH

IF5.9

2024-12-12

PREAI

Folkestad, Lars; Prakash, Siddharth K.; Nagamani, Sandesh C. S.; Andersen, Niels Holmark; Carter, Erin; Hald, Jannie Dahl; Johnson, Riley J.; Langdahl, Bente; Perfetto, Eleanor M.; Raggio, Cathleen; Ralston, Stuart H.; Sandhaus, Robert A.; Semler, Oliver; Tosi, Laura; Orwoll, Eric

Discriminatory Properties of the Quality-Adjusted Life Year Based Cost-Effectiveness Analyses for Patients With Disabilities: A Duchenne Muscular Dystrophy Case Study 残疾患者基于质量调整生命年的成本效益分析的歧视性属性: 杜氏肌营养不良症案例研究

VALUE IN HEALTH

IF6

2024-12-01

PREAI

Klimchak, Alexa C.; Sedita, Lauren E.; Perfetto, Eleanor M.; Gooch, Katherine L.; Malone, Daniel C.

Measuring and Demonstrating the Value of Patient Engagement Across the Medicines Lifecycle: A Patient Engagement Impact Measurement Framework

PATIENT-PATIENT CENTERED OUTCOMES RESEARCH

IF3.1

2024-09-16

OAAI

Klein, Beyza; Perfetto, Eleanor M.; Oehrlein, Elisabeth M.; Weston, Fay; Lobban, Trudie C. A.; Boutin, Marc

Development and Testing of a Chronic-Disease Patient Experience Mapping Toolbox

PATIENT-PATIENT CENTERED OUTCOMES RESEARCH

IF3.1

2024-01-03

OAAI

Oehrlein, Elisabeth M.; Schoch, Silke; Majercak, Kelsie; Gressler, Laura Elisabeth; Costantino, Ryan C.; Love, T. Rosie; Perfetto, Eleanor M.

Developing Patient-Centered Real-World Evidence: Emerging Methods Recommendations From a Consensus Process 开发以患者为中心的真实世界证据: 来自共识过程的新兴方法建议

VALUE IN HEALTH

IF6

2023-01-01

OAAI

Oehrlein, Elisabeth M.; Schoch, Silke; Burcu, Mehmet; McBeth, Julia F.; Bright, Jennifer; Pashos, Chris L.; Willke, Richard; Love, T. Rosie; Mattingly II, T. Joseph; Perfetto, Eleanor M.; Patient Ctr Real World Evidence Working Grp

Patient-Centered Core Impact Sets: What They are and Why We Need Them

PATIENT-PATIENT CENTERED OUTCOMES RESEARCH

IF3.1

2022-06-02

OAAI

Perfetto, Eleanor M.; Oehrlein, Elisabeth M.; Love, T. Rosie; Schoch, Silke; Kennedy, Annie; Bright, Jennifer

Value-based evidence across health care sectors: a push for transparent real-world studies, data, and evidence dissemination

health economics

IF3.3

2022-04-06

OAAI

van den Broek, Remon W. M.; Matheis, Robert J.; Bright, Jennifer L.; Hartog, Tessa E.; Perfetto, Eleanor M.

A Useful and Sustainable Role for N-of-1 Trials in the Healthcare Ecosystem N-of-1试验在医疗保健生态系统中的有用和可持续作用

CLINICAL PHARMACOLOGY & THERAPEUTICS

IF5.5

2021-10-20

OAAI

Selker, Harry P.; Cohen, Theodora; D'Agostino, Ralph B.; Dere, Willard H.; Ghaemi, S. Nassir; Honig, Peter K.; Kaitin, Kenneth I.; Kaplan, Heather C.; Kravitz, Richard L.; Larholt, Kay; McElwee, Newell E.; Oye, Kenneth A.; Palm, Marisha E.; Perfetto, Eleanor; Ramanathan, Chandra; Schmid, Christopher H.; Seyfert-Margolis, Vicki; Trusheim, Mark; Eichler, Hans-Georg

Patient Centeredness in Hepatitis C Direct-Acting Antiviral Treatment Delivery to People Who Inject Drugs: A Scoping Review

PATIENT-PATIENT CENTERED OUTCOMES RESEARCH

IF3.1

2020-12-29

OAAI

Abdelwadoud, Moaz; Mattingly, T. Joseph, II; Segui, Hemanuel Arroyo; Gorman, Emily F.; Perfetto, Eleanor M.

Engaging Patients in Real-World Evidence: An Atrial Fibrillation Patient Advisory Board Case Example

PATIENT-PATIENT CENTERED OUTCOMES RESEARCH

IF3.1

2020-12-23

OAAI

Oehrlein, Elisabeth M.; Luo, Xuemei; Savone, Mirko; Lobban, Trudie; Kang, Amiee; Lee, Brian; Gale, Rex; Schoch, Silke; Perfetto, Eleanor

Improving Access and Quality of Health Care in the United States: Shared Goals Among Patient Advocates

PATIENT-PATIENT CENTERED OUTCOMES RESEARCH

IF3.1

2020-10-21

OAAI

Oehrlein, Elisabeth M.; Harris, Jason; Balch, Alan; Furlong, Pat; Hargis, Eric; Woolley, Mary; Perfetto, Eleanor

Medical costs of Alpha-1 antitrypsin deficiency-associated COPD in the United States

ORPHANET JOURNAL OF RARE DISEASES

IF3.5

2020-09-23

OAAI

Sieluk, Jan; Slejko, Julia F.; Silverman, Henry; Perfetto, Eleanor; Mullins, C. Daniel

De fining Patient Engagement in Research: Results of a Systematic Review and Analysis: Report of the ISPOR Patient -Centered Special Interest Group

VALUE IN HEALTH

IF6

2020-06-01

OAAI

Harrington, Rachel L.; Hanna, Maya L.; Oehrlein, Elisabeth M.; Camp, Rob; Wheeler, Russell; Cooblall, Clarissa; Tesoro, Theresa; Scott, Amie M.; von Gizycki, Rainald; Nguyen, Francis; Hareendran, Asha; Patrick, Donald L.; Perfetto, Eleanor M.

Peer Review and Transparency in Evidence -Source Selection in Value and Health Technology Assessment

VALUE IN HEALTH

IF6

2020-06-01

OAAI

Desai, Bansri; Mattingly, T. Joseph, II; van den Broek, Remon W. M.; Ngan Pham; Frailer, Megan; Yang, Joseph; Perfetto, Eleanor M.

Patient-Reported Outcomes in Orphan Drug Labels Approved by the US Food and Drug Administration

VALUE IN HEALTH

IF6

2019-08-01

OAAI

Hong, Yoon Duk; Villalonga-Olives, Ester; Perfetto, Eleanor M.