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Transition needs and preferences identified during peer visits to three European best-practice CAYA cancer Long-Term Follow-Up care centres: An EU-CAYAS-NET project 在访问三家欧洲最佳实践CAYA癌症长期随访护理中心期间识别出的过渡需求和偏好：一项EU-CAYAS-NET项目 Wams, Jikke; den Hartogh, Jaap; Mathot, Cherine; te Dorsthorst, Jeroen; Gubi, Marie-Therese; Krottendorfer, Kerstin; Leiss, Ulrike; Soria, Esther Lasheras; Escalera, Begonya Nafria; Kosir, Urska; Rizvi, Katie; Schneider, Carina; Brunmair, Barbara; de Beijer, Ismay; Mulder, Renee L.; Kremer, Leontien C. M.; van der Pal, Helena J. H. 分享 收藏
Exploring reported causes of vaccine hesitancy among European adolescents and parents: results of a citizen science project Millat-Martinez, Pere; Mora, Ana; Condeminas, Pol Ezquerra; Castello, Miquel; Alsina, Claudia; Fiestas, Beatriz; Bason, Matteo; Esquerda, Montserrat; Perera-LLuna, Alexandre; Nafria, Begonya; Bassat, Quique 分享 收藏
High-Fidelity Clinical Simulation to Improve a Pediatric Clinical Trial Design: Lessons Learned and Conceptualization of the Return on Investment (ROI) and Return on Engagement (ROE) Analysis Quintilla, Jose Maria; de la Gala, Carmen; Berrueco, Ruben; Claverol, Joana; Figueres, Bibiana; Bergos, Anna; Rodriguez, Lourdes; Mora, Anna; Dibiaso, Victoria; Llanos, Cristina; Nafria, Begonya 分享 收藏
Developing rights-based standards for children having tests, treatments, examinations and interventions: using a collaborative, multi-phased, multi-method and multi-stakeholder approach to build consensus Bray, Lucy; Carter, Bernie; Kiernan, Joann; Horowicz, Ed; Dixon, Katie; Ridley, James; Robinson, Carol; Simmons, Anna; Craske, Jennie; Sinha, Stephanie; Morton, Liza; Nafria, Begonya; Forsner, Maria; Rullander, Anna-Clara; Nilsson, Stefan; Darcy, Laura; Karlsson, Katarina; Hubbuck, Cath; Brenner, Maria; Spencer-Little, Sian; Evans, Kath; Rowland, Andrew; Hilliard, Carol; Preston, Jennifer; Leroy, Piet L.; Roland, Damian; Booth, Lisa; Davies, Jean; Saron, Holly; Mansson, Marie Edwinson; Cox, Ann; Ford, Karen; Campbell, Steven; Blamires, Julie; Dickinson, Annette; Neufeld, Michael; Peck, Blake; de Avila, Marla; Feeg, Veronica; Mediani, Henny Suzana; Atout, Maha; Majamanda, Maureen D.; North, Natasha; Chambers, Christine; Robichaud, Fanny 分享 收藏
Optimizing expert and patient input in pediatric trial design: Lessons learned and recommendations from a collaboration between conect4children and European Patient-CEntric ClinicAl TRial PLatforms Dhaenens, Britt A. E.; Mahler, Fenna; Batchelor, Hannah; Dicks, Pamela; Gaillard, Segolene; Nafria, Begonya; Kopp-Schneider, Annette; Ribeiro, Maria Alexandra; Schwab, Matthias; Sparber-Sauer, Monika; Leubner, Jonas; de Wildt, Saskia N.; Oostenbrink, Rianne 分享 收藏
Clinical, methodology, and patient/carer expert advice in pediatric drug development by conect4children Cheng, Katharine; Mahler, Fenna; Lutsar, Irja; Escalera, Begonya Nafria; Breitenstein, Stefanie; Vassal, Gilles; Claverol, Joana; Palacio, Nuria Noel; Portman, Ron; Pope, Gavin; Bakker, Martijn; van Der Geest, Tessa; Turner, Mark A. A.; de Wildt, Saskia N. N. 分享 收藏
How Did the COVID-19 Lockdown Affect Children and Adolescent's Well-Being: Spanish Parents, Children, and Adolescents Respond Ajanovic, Sara; Garrido-Aguirre, Jon; Baro, Barbara; Balanza, Nuria; Varo, Rosauro; Millat-Martinez, Pere; Arias, Sara; Fonollosa, Jordi; Perera-Lluna, Alexandre; Jordan, Iolanda; Munoz-Almagro, Carmen; Bonet-Carne, Elisenda; Crosas-Soler, Aina; Via, Esther; Nafria, Begonya; Garcia-Garcia, Juan Jose; Bassat, Quique 分享 收藏
Children's Preferences for Oral Dosage Forms and Their Involvement in Formulation Research via EPTRI (European Paediatric Translational Research Infrastructure) Alessandrini, Elisa; Brako, Francis; Scarpa, Mariagiovanna; Lupo, Mariangela; Bonifazi, Donato; Pignataro, Valeria; Cavallo, Maria; Cullufe, Ornela; Enache, Cristina; Nafria, Begonya; Claverol, Joana; De Taeye, Leen; Vermeulen, Eric; Preston, Jennifer; Tuleu, Catherine 分享 收藏
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Understanding multi-stakeholder needs, preferences and expectations to define effective practices and processes of patient engagement in medicine development: A mixed-methods study Faulkner, Stuart D.; Sayuri Ii, Suzanne; Pakarinen, Chi; Somers, Fabian; Jose Vicente Edo, Maria; Prieto Remon, Lucia; Diaz Ponce, Ana; Gove, Dianne; Ferrer, Elisa; Nafria, Begonya; Bertelsen, Neil; Boudes, Mathieu; Brooke, Nicholas; Moutet, Alexandra; Fahy, Nick 分享 收藏
The conect4children (c4c) Consortium: Potential for Improving European Clinical Research into Medicines for Children Turner, Mark A.; Hildebrand, Heidrun; Fernandes, Ricardo M.; de Wildt, Saskia N.; Mahler, Fenna; Hankard, Regis; Leary, Rebecca; Bonifazi, Fedele; Nobels, Patrick; Cheng, Katharine; Attar, Sabah; Rossi, Paolo; Rocchi, Francesca; Claverol, Joana; Nafria, Begonya; Giaquinto, Carlo 分享 收藏
European research networks to facilitate drug research in children Turner, Mark A.; Cheng, Katharine; de Wildt, Saskia; Hildebrand, Heidrun; Attar, Sabah; Rossi, Paolo; Bonifazi, Donato; Ceci, Adriana; Claverol, Joana; Nafria, Begonya; Giaquinto, Carlo 分享 收藏
WHAT ARE THE PRIORITY PATIENT ENGAGEMENT ACTIVITIES IN MEDICINES DEVELOPMENT? RESULTS OF A GLOBAL MULTI-STAKEHOLDER CONSULTATION Skovlund, S.; Gorbenko, O., V; Richards, D. P.; Nafria, B.; Delbecque, L.; Deane, K. H.; Schroeder, K. B.; Sargeant, I; Hamoir, A. M. 分享 收藏
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PATIENT EMPOWERMENT FOR HEALTHCARE DECISION-MAKING ASSESSING ONCOLOGY INNOVATION THROUGH MULTICRITERIA DECISION ANALYSIS Aguaron, A.; Fernandez, A.; Gimon, A.; Nafria, B.; Gaspar, B.; Guarga, L.; Galvez, M.; Fuentes, M.; Saldana, R.; Badia, X. 分享 收藏
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